Amber Yates: Inside Agios’ Partnership with the Sickle Cell Community
Amber Yates, Senior Medical Director and Global Medical Affairs Leader at Agios Pharmaceuticals, shared Agios Pharmaceuticals’s post on LinkedIn:
“‘You’re on my list of people who are supposed to teach me about sickle cell disease.’
It’s a comment I’ve never forgotten.
One of my earliest memories of Brian Goff was at his very first Agios Connect, when he was being formally introduced to the company.
By chance, he sat at the same table as me.
When I introduced myself, Brian glanced at his phone, smiled, and said,
‘You’re on my list of people who are supposed to teach me about sickle cell disease.’
What followed was not small talk.
We spent the evening discussing sickle cell disease, the people living with it, the challenges they face, and the tremendous unmet needs that remain.
What struck me most was he wasn’t just checking a box, he was geniunely curious. The authenticity behind his questions. He truly wanted to understand.
Over the years, our conversations continue.
Whether discussing science, patients, or the broader community, Brian consistently approaches the conversation with humility, engagement, and a desire to learn.
For those of us privileged to work in rare diseases, leadership matters.
It matters when leaders seek to understand the science. It matters when they listen to patients. And it matters when they make the time to learn from the people closest to the community.”
Agios Pharmaceuticals shared a post on LinkedIn:
“On the latest episode of Cheat Codes: A Sickle Cell Podcast, Sickle Cell Warriors Kyle A. Smith and Shamonica Wiggins-Mayes sit down with our CEO, Brian Goff, for a candid conversation.
This Sickle Cell Warrior Takeover episode highlights what true allyship between the community and the industry should look like – listening and earning trust over time and working alongside each other from the very beginning.
Kyle and Shamonica also describe the realities of living with Sickle Cell Disease and navigating care, offering a deeper understanding of these challenges.
This podcast is not intended as medical advice.
Please consult your healthcare team with any treatment-related questions.”
Proceed to the video attached to the post.
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