Moving Beyond Annualized Bleed Rates to Whole-Person Quality of Life – CRH French Reference Center for Hemophilia Lyon
CRH French Reference Center for Hemophilia Lyon, shared a post on LinkedIn about a recent article by Nicolas Giraud et al., published in Haemophilia, adding:
“One patient. One physician. One shared conviction.
In the era of near-zero bleeds, success in hemophilia can no longer be measured by ABR alone.
Therapeutic innovation has transformed hemostatic control.
But are we translating these remarkable advances into better joint health, function, autonomy, quality of life, and meaningful participation?
In this article, a patient representative and a hematologist bring their perspectives together — and agree on one key message:
The next challenge in hemophilia care is not to redefine comprehensive care, but to make it a reality for every patient, in everyday clinical practice.
From controlling bleeding to enabling people to live well, move freely, participate fully, and achieve what matters to them.”
Title: From Bleeding Control to Health: Implementing Multidimensional and Multidisciplinary Hemophilia Care Into the Era of Therapeutic Innovation
Authors: Nicolas Giraud, Yesim Dargaud
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