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Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Sara García Barcenilla/X
Aug 10, 2025, 04:39

Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders

Sara García Barcenilla, Nurse in the Thrombosis and Hemostasis Unit, La Paz-IdiPAZ University Hospital, shared an insightful post on LinkedIn:

”I am very very excited about the recent publication of our first approach to defining the competencies and optimal curriculum for hemophilia nurses in Spain!

We have worked with several nurses across the country and have reached consensus on the knowledge and skills nurses need at basic, advanced, and expert levels, our role in treatment management, monitoring patient-reported outcomes, and the importance of education and communication with patients, families, and colleagues.

This proposed three-tiered stratification could help define programs, accreditations, and policies, promoting consistent, high-quality care for people with hemophilia and congenital bleeding disorders.

Many thanks to the participating nurses and to the methodological support from Roche and Evidence.

This is my first article as lead author, and their experience and guidance have been key to my understanding of the process of preparing and disseminating our results.”

Read the full open-access article here.

Article: Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion

Authors: Sara García-Barcenilla, Montserrat Rambla Pérez, Noelia Pérez, Alfonso Castro Blanco, Anna Diaz, Carmen Fernandez Sarmiento, Eva Álvarez Martínez, María Dolores de Dios, María del Carmen García Martínez, María Teresa Torres, Mercè Triquell Garrell, Nuria Caballero Mencía, María Antonia Fernández

Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders

Stay updated on all science in the field of Hemophilia and Bleeding Disorders with Hemostasis Today.

Alfonso Castro Blanco Anna Diaz bleeding disorders Carmen Fernandez Sarmiento congenital bleeding disorders Eva Álvarez Martínez Evidence Haemophilia journal Health Hematology Hemophilia hemophilia nurses Hemostasis Today María Antonia Fernández María del Carmen García Martínez María Dolores de Dios María Teresa Torres Medicine Mercè Triquell Garrell Montserrat Rambla Pérez Noelia Pérez Nuria Caballero Mencía Roche Sara García-Barcenilla WFH
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