Mariasanta Napolitano: A Delphi-Based Consensus on Integrated Monitoring in Haemophilia Care
Mariasanta Napolitano, Associate Professor of Hematology at the University of Palermo, shared on LinkedIn about a recent article she and her colleagues co-authored, adding:
”I am pleased to share the publication of our new paper Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool.
This work reflects a principle that I consider increasingly important in everyday haemophilia care: in a rapidly evolving treatment landscape, we need monitoring tools that go beyond single clinical parameters and help us integrate bleeding outcomes, joint health, treatment adherence, pharmacokinetics, and patient-reported quality of life into a more comprehensive and meaningful assessment.
I truly believe that better diagnostic and monitoring strategies are essential to support more personalized, consistent, and forward-looking therapeutic decisions.
Grateful to all co-authors for this valuable collaboration.”
Title: Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool
Authors: Angelo Claudio Molinari, Erminia Baldacci, Giovanni Barillari, Antonella Coluccia, Antonio Coppola, Anna Chiara Giuffrida, Gaetano Giuffrida, Chiara Gorio, Silvia Linari, Matteo Luciani, Alessandro Catini, Ilaria Nichele, Flora Peyvandi, Berardino Pollio, Annarita Tagliaferri, Federica Valeri, Maria Rosaria Villa, Ezio Zanon, Mariasanta Napolitano
Read the Full Article on Journal of Clinical Medicine
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