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Marfan syndrome

Maya Brown-Zimmerman: Bridging Patient Experience and Genetic Counseling in Marfan Syndrome
May 25, 2026, 07:31 | Voices
Maya Brown-Zimmerman: Bridging Patient Experience and Genetic Counseling in Marfan Syndrome
Maya Brown-Zimmerman, Cardiac Genetic Counselor at Norton Children's, Advisor to the Professional Advisory Board at…
Ryan Rodarmer: Writing Through Aortic Disease and Medical Trauma
May 11, 2026, 12:52 | Voices
Ryan Rodarmer: Writing Through Aortic Disease and Medical Trauma
Ryan Rodarmer, Director, The VEDS Movement at The Marfan Foundation, shared a post on LinkedIn:…
Gareth Owens: EACTS Aortic Webinar on Heritable Thoracic Aortic Disease and Marfan Syndrome
May 2, 2026, 14:42 | Voices
Gareth Owens: EACTS Aortic Webinar on Heritable Thoracic Aortic Disease and Marfan Syndrome
Gareth Owens, Vice President Program Management at Finastra, shared a post on LinkedIn: "Delighted to be…
Rose Almashayekh: You Can’t Always See Health - Lessons from Marfan Syndrome
Feb 9, 2026, 16:44 | Voices
Rose Almashayekh: You Can’t Always See Health - Lessons from Marfan Syndrome
Rose Almashayekh, UBC Undergraduate Student at The University of British Columbia, posted on LinkedIn: ''You…
Heghine Khachatryan: We Already Have The Knowledge Not to Overlook Rare Diseases
Feb 9, 2026, 14:45 | Voices
Heghine Khachatryan: We Already Have The Knowledge Not to Overlook Rare Diseases
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology…
Bailey's Battle: James Milburn Invites to 5th Annual Heartworks Chicago Gala Benefitting the The Marfan Foundation
Dec 27, 2025, 08:12 | Organizations
Bailey's Battle: James Milburn Invites to 5th Annual Heartworks Chicago Gala Benefitting the The Marfan Foundation
James Milburn, President of National Demolition Association, shared a post on LinkedIn: "Our oldest daughter Bailey…
The Marfan Foundation Raises Awareness: Joaquin Ramos’ Life-Saving Experience with Aortic Dissection
Sep 16, 2025, 07:36 | Voices
The Marfan Foundation Raises Awareness: Joaquin Ramos’ Life-Saving Experience with Aortic Dissection
   The Marfan Foundation posted on LinkedIn: ''Opinion: STAT action saved my life, it could…
Aortic Dissection Awareness: Marfan Foundation Shares Key Warning Signs
Sep 12, 2025, 05:27 | Organizations
Aortic Dissection Awareness: Marfan Foundation Shares Key Warning Signs
The Marfan Foundation has shared a post on LinkedIn: “Throughout the month of September, we're…
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