Akshat Jain/Loma Linda University Health
Feb 28, 2026, 16:25
Akshat Jain: Elevating Equity in Diagnosis, Care, and Research on World Rare Disease Day 2026
Akshat Jain, Hematology Pediatric Workforce Task Force at American Society of Hematology, shared on LinkedIn:
”Today is World Rare Disease Day 2026 — a moment to champion equity in diagnosis, care, and research for the 300 million people living with rare conditions.
This year’s theme, ‘Elevate Equity in Every Action’, reminds us that policy, science, and clinical practice must include rare disease voices from the start.
How is your organization working to close these gaps?
Prevention and Diagnosis :
- Accessible (virtual or live) Genetic Counselling
- Global NewBorn Testing
- Affordable Genome sequencing
- Speciality trained workforce
RandD, Therapies:
- Novel Therapeutics in RD
- Scale up access to transformative therapies to meet global demand
- Cost Equity in Gene Therapy”
Stay updated with Hemostasis Today.
-
Oct 19, 2026, 19:44Where You Live Should not Determine Whether You Receive Care – World Federation of Hemophilia
-
Oct 19, 2026, 19:42Belen Bianco: Prevention, Early Suspicion and an Interdisciplinary Approach Save Lives
-
Oct 19, 2026, 19:40Christina Chrysohoou: Catheter-Based LAAC vs OAC for Stroke Prevention in Atrial Fibrillation
-
Oct 19, 2026, 19:38Matthew Flick: A Two-Day Research Meeting on Fibrinogen, Hemostasis and Thrombosis
-
Oct 19, 2026, 19:37Hayat Saeed: Excited to Share Our Publication on the FGL1–Hepcidin Axis in Iron Homeostasis and Disease
-
Oct 19, 2026, 19:08IPAW 2026 Comes to a Close, but the Work Continues – PPTA
-
Oct 19, 2026, 17:44Paul Riley: Moderating a Webinar on Anticoagulation Monitoring
-
Oct 19, 2026, 16:36Christopher Pittman: Blood Clot Prevention Cannot End at Hospital Discharge
-
Oct 19, 2026, 16:13Javier M. Floren: When Immune Cells Move With Their Environment