Sarah Richardson: We Need Experts, We Need Programs and We Need Accountability in Blood Disorders Community
Sarah Richardson, Information Technology Administrator at ABR Systems Group, reposted from Hemophilia Federation of America on LinkedIn:
”One year.
This isn’t just about our community of bleeding disorders.
Blood safety, research, and monitoring don’t just pause without consequences.
These programs matter for everyone, from patients with rare conditions to anyone who may need blood products in an emergency.
Right now, there are gaps that shouldn’t exist. And that’s scary.
We need these experts. We need these programs. We need accountability.
If you’ve ever cared about someone who relies on safe, effective medical care, this matters to you too.”
Quoting Hemophilia Federation of America‘s post:
”It has been one year since staff from the CDC’s Division of Blood Disorders were placed on administrative leave.
Since April 1, 2025, critical programs serving the bleeding disorders community have lacked the leadership and expertise needed to sustain them.
Join HFA for a national community organizing call to receive updates and hear from partners actively working to reinstate these essential staff and services.
Wednesday, April 8
7:00–8:00 PM EDT
This session will include updates, community perspectives, and opportunities for engagement.”
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