Hemophilia Federation of America/X
Aug 23, 2025, 16:06
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Hemophilia Federation of America (HFA) published on X:
”Skyler Tulley, born with severe Hemophilia B, refuses to be defined by limits. From ultras to his next 100-mile challenge, he shows what resilience looks like:
“Hemophilia doesn’t define what I can do—it only shapes how fiercely I fight to do it.”
His journey shows the power of strength, advocacy, and perseverance in the bleeding disorders community.
Stay informed with stories that matter — on Hemostasis Today.
-
Jul 13, 2026, 17:39Pascal Boulanger: Send a Postcard to Your Lab Staff From ISTH 2026
-
Jul 13, 2026, 17:21Stefano Navarro: Presenting Our Recently Published Article at ISTH 2026
-
Jul 13, 2026, 17:12Santagata Davide: A Great Session and an Incredible Opportunity to Present Our Research at ISTH 2026
-
Jul 13, 2026, 16:26Real-World Data Across Time Reveal Important Advances in Hemophilia Treatment – ATHN
-
Jul 13, 2026, 16:19Mary Cushman: Celebrating Our Incredible ISTH Council Members in Paris
-
Jul 13, 2026, 16:17Wolfgang Miesbach: Gene Therapy Shows Promising Early Results in Adolescents With Hemophilia B at ISTH 2026
-
Jul 13, 2026, 16:06Dino Mehic: Honored to Receive the ISTH Early Career Top Reviewer Awards
-
Jul 13, 2026, 16:01Advancing DIC Diagnosis in Cirrhosis Through Disease-Specific Risk Stratification – JTH
-
Jul 13, 2026, 15:52Joshua Muia: Presenting Our Research on ADAMTS13/VWF Dysregulation in Sepsis at ISTH 2026