Akshat Jain/Loma Linda University Health
Feb 28, 2026, 16:25
Akshat Jain: Elevating Equity in Diagnosis, Care, and Research on World Rare Disease Day 2026
Akshat Jain, Hematology Pediatric Workforce Task Force at American Society of Hematology, shared on LinkedIn:
”Today is World Rare Disease Day 2026 — a moment to champion equity in diagnosis, care, and research for the 300 million people living with rare conditions.
This year’s theme, ‘Elevate Equity in Every Action’, reminds us that policy, science, and clinical practice must include rare disease voices from the start.
How is your organization working to close these gaps?
Prevention and Diagnosis :
- Accessible (virtual or live) Genetic Counselling
- Global NewBorn Testing
- Affordable Genome sequencing
- Speciality trained workforce
RandD, Therapies:
- Novel Therapeutics in RD
- Scale up access to transformative therapies to meet global demand
- Cost Equity in Gene Therapy”
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