The European Haemophilia Consortium/X
Aug 26, 2025, 09:27
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
The European Haemophilia Consortium (EHC), has shared a post on X:
“EHC Think Tank releases new paper on Bleeding Disorders registries! After 2+ years of workshops, they present solutions for fragmented data and poor collaboration: Better transparency, Standardised collection, Core EU dataset
Read it now.”
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