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Emily Smith: From Personal Experience to Global Advocacy on World Haemophilia Day
Apr 19, 2026, 14:08 | Voices
Emily Smith: From Personal Experience to Global Advocacy on World Haemophilia Day
Emily Smith, Reservations Supervisor at De Vere Beaumont Estate, Youth Ambassador of the Haemophilia Society,…
Shall I Bleed Less with Age? Just 2 Weeks Until the Webinar - EHC
Apr 15, 2026, 09:10 | Voices
Shall I Bleed Less with Age? Just 2 Weeks Until the Webinar - EHC
EHC - European Haemophilia Consortium shared a post on LinkedIn: ''Less than two weeks to…
EU List of Critical Medicines Webinar Recording Now Available - EHC
Apr 14, 2026, 16:02 | Organizations
EU List of Critical Medicines Webinar Recording Now Available - EHC
EHC - European Haemophilia Consortium shared a post on LinkedIn: "Webinar recording now available! EHC's…
Understanding Bleeding Disorder of Unknown Cause - EHC
Apr 14, 2026, 09:51 | Voices
Understanding Bleeding Disorder of Unknown Cause - EHC
EHC – European Haemophilia Consortium shared a post on LinkedIn: ''Extremely Rare Bleeding Disorder of the Month:…
3 Days, 14 Leaders, 1 Mission at The 13th EHC Youth Leadership Workshop
Apr 12, 2026, 14:49 | Voices
3 Days, 14 Leaders, 1 Mission at The 13th EHC Youth Leadership Workshop
EHC - European Haemophilia Consortium shared a post on LinkedIn: ''On the weekend of 10–12…
Diverse Voices But Shared Mission - Day 1 of EHC Youth Leadership Workshop
Apr 10, 2026, 17:39 | Voices
Diverse Voices But Shared Mission - Day 1 of EHC Youth Leadership Workshop
EHC - European Haemophilia Consortium shared a post on LinkedIn: ''Day 1 of the EHC…
A Call to Get the Biotech Act Right for The Millions Living with Bleeding Disorders - EHC
Apr 7, 2026, 16:44 | Voices
A Call to Get the Biotech Act Right for The Millions Living with Bleeding Disorders - EHC
EHC - European Haemophilia Consortium shared on LinkedIn: ''Innovation without access is not progress. On…
Advancing Care for Women and Girls with Bleeding Disorders in Serbia - EHC
Mar 29, 2026, 11:15 | Voices
Advancing Care for Women and Girls with Bleeding Disorders in Serbia - EHC
EHC - European Haemophilia Consortium shared a post on LinkedIn: ''From 27 to 29 March,…
Heghine Khachatryan: Best-Practice Recommendations for Implementing Shared Decision-Making in Hemophilia Care
Mar 7, 2026, 14:41 | Science
Heghine Khachatryan: Best-Practice Recommendations for Implementing Shared Decision-Making in Hemophilia Care
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology…
From Chronic Pain with Every Step to Exercising Every Day - EHC
Mar 5, 2026, 16:56 | Voices
From Chronic Pain with Every Step to Exercising Every Day - EHC
EHC - European Haemophilia Consortium shared a post on LinkedIn: "From chronic pain with every…
Register for A Webinar on von Willebrand Disease in Ageing - EHC
Feb 25, 2026, 12:20 | Insight
Register for A Webinar on von Willebrand Disease in Ageing - EHC
European Haemophilia Consortium (EHC) shared on LinkedIn: ''Register for our Webinar on von Willebrand Disease…
Wolfgang Miesbach: An Important Topic on How Care for Bleeding Disorders Can Be Organized Across Europe at EAHAD 2026
Feb 21, 2026, 13:00 | Voices
Wolfgang Miesbach: An Important Topic on How Care for Bleeding Disorders Can Be Organized Across Europe at EAHAD 2026
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn: ''In…
Awareness and Research on Factor V Deficiency Are Critical - EHC
Feb 15, 2026, 10:52 | Voices
Awareness and Research on Factor V Deficiency Are Critical - EHC
European Haemophilia Consortium (EHC) shared a post on LinkedIn: "Extremely Rare Bleeding Disorder of the…
Join the EHC Round Table on Extremely Rare Bleeding Disorders
Feb 3, 2026, 16:34 | Voices
Join the EHC Round Table on Extremely Rare Bleeding Disorders
European Haemophilia Consortium (EHC) posted on LinkedIn: ''Join the EHC Round Table on Extremely Rare…
Hurry to Join EHC Youth Leadership Workshop 2026
Jan 6, 2026, 09:45 | Insight
Hurry to Join EHC Youth Leadership Workshop 2026
EHC - European Haemophilia Consortium shared on LinkedIn: ''Applications NOW OPEN for our Youth Leadership…
Miguel Crato Reflects on 2025 for EHC
Dec 25, 2025, 17:49 | Voices
Miguel Crato Reflects on 2025 for EHC
EHC Haemophilia shared on X: ''EHC President Miguel Crato reflects on 2025: a year of…
Fiona Robinson on EHCucate: EHC New Online Learning Tool
Dec 23, 2025, 13:49 | Insight
Fiona Robinson on EHCucate: EHC New Online Learning Tool
Fiona Robinson, Consultant, Medical Writing and Editing, at Communications Fiona Robinson, reposted from EHC -…
Camilla Lombardi Shares an EHC Nutrition Guide for People with Bleeding Disorders
Dec 19, 2025, 10:08 | Insight
Camilla Lombardi Shares an EHC Nutrition Guide for People with Bleeding Disorders
Camilla Lombardi, Communication and Project Officer at EHC - European Haemophilia Consortium, reposted from EHC…
Daria Camilli on EuroBloodNet and EHC Collaboration for Bleeding Disorders
Dec 18, 2025, 17:13 | Insight
Daria Camilli on EuroBloodNet and EHC Collaboration for Bleeding Disorders
Daria Camilli, Education and Communication Manager at EHC - European Haemophilia Consortium, reposted from ERN-EuroBloodNet…
Live in Berlin, Germany, for the 10th ERIN Summit
Dec 8, 2025, 06:32 | Organizations
Live in Berlin, Germany, for the 10th ERIN Summit
European Haemophilia Consortium (EHC) posted on LinkedIn: ''We’re live in Berlin, Germany, for the 10th…
Families Empowered: Stacey McGeown at the EHC ERIN Summit
Dec 8, 2025, 05:59 | Voices
Families Empowered: Stacey McGeown at the EHC ERIN Summit
Stacey McGeown, Co-Founder, Equipath Analytics, shared a post on LinkedIn: ''Another amazing, emotional and inspiring…
ERIN Webinar Recording Now Available on the EHC YouTube Channel
Dec 1, 2025, 09:32 | Organizations
ERIN Webinar Recording Now Available on the EHC YouTube Channel
European Haemophilia Consortium (EHC) posted on LinkedIn: ''European Rare and Inhibitor Network (ERIN) Webinar recording…
The EHC New Technologies Conference 2025 is Now Underway in Ljubljana
Nov 3, 2025, 08:49 | Organizations
The EHC New Technologies Conference 2025 is Now Underway in Ljubljana
  European Haemophilia Consortium (EHC) posted on LinkedIn: ''The EHC New Technologies Conference 2025 is…
European Haemophilia Consortium: New Technologies Conference 2025
Nov 2, 2025, 14:12 | Organizations
European Haemophilia Consortium: New Technologies Conference 2025
European Haemophilia Consortium (EHC) posted on LinkedIn: ”The EHC New Technologies Conference 2025 is now underway in…
Wolfgang Miesbach: Proud to Share This Commentary Just Accepted in Research and Practice in Thrombosis and Haemostasis
Oct 31, 2025, 01:59 | Insight
Wolfgang Miesbach: Proud to Share This Commentary Just Accepted in Research and Practice in Thrombosis and Haemostasis
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: "Advancing Care for Women…
EHC New Tech 2025: Join to Explore Advances in Bleeding Disorders Treatments
Oct 17, 2025, 08:28 | Insight
EHC New Tech 2025: Join to Explore Advances in Bleeding Disorders Treatments
The European Haemophilia Consortium (EHC) shared on X: ''Just two weeks to the EHC New…
Unmasking BDUC: Johanna Gebhart’s Call for Change at EHC 2025
Oct 16, 2025, 06:03 | Science
Unmasking BDUC: Johanna Gebhart’s Call for Change at EHC 2025
  Johanna Gebhart, Associate Professor and Haemostasis Expert at the Medical University of Vienna, shared …
EAHAD Signs Memorandum of Understanding with WFH To Empower The Global Bleeding Disorders Community
Oct 7, 2025, 08:30 | Organizations
EAHAD Signs Memorandum of Understanding with WFH To Empower The Global Bleeding Disorders Community
  European Association for Haemophilia and Allied Disorders (EAHAD) posted on LinkedIn: ''We are pleased…
EAHAD PT Committee Chair Ruth Elise Is Contributing to The Discussion On Joint Health and Mobility At EHC 2025
Oct 6, 2025, 04:10 | Insight
EAHAD PT Committee Chair Ruth Elise Is Contributing to The Discussion On Joint Health and Mobility At EHC 2025
The European Association for Haemophilia and Allied Disorders (EAHAD) shared on X: ''We’re delighted to…
Maria Elisa Mancuso: During Day 2 of the Annual EHC Conference We Discussed Very Rare Bleeding Disorders!
Oct 5, 2025, 08:32 | Insight
Maria Elisa Mancuso: During Day 2 of the Annual EHC Conference We Discussed Very Rare Bleeding Disorders!
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''During Day…
Maria Elisa Mancuso: Chance to Listen to Inspiring Experiences of People Who Live With Bleeding Disorders
Oct 4, 2025, 10:21 | Voices
Maria Elisa Mancuso: Chance to Listen to Inspiring Experiences of People Who Live With Bleeding Disorders
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''EHC Conference…
Emicizumab Approvals in Europe: European Haemophilia Consortium Shares Key Updates
Oct 1, 2025, 16:30 | Organizations
Emicizumab Approvals in Europe: European Haemophilia Consortium Shares Key Updates
  European Haemophilia Consortium (EHC) posted on LinkedIn: ''Indications of non-factor treatments for haemophilia A…
Caterina Casari: Privilege to Be Invited to The First VWD Summit
Sep 22, 2025, 22:20 | Voices
Caterina Casari: Privilege to Be Invited to The First VWD Summit
Caterina Casari, Researcher (CRCN) at Inserm, reposted from EHC  on LinkedIn: ''It was a privilege…
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
Sep 20, 2025, 14:51 | Blog
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
  William McKeown, Geriatrician at National Hemophilia Centre, posted on X: ''Excited to be off…
Zita Gacser: ''EHC Think Tank'' Registries for Bleeding Disorders
Sep 15, 2025, 16:52 | Organizations
Zita Gacser: ''EHC Think Tank'' Registries for Bleeding Disorders
Zita Gacser, Community and Projects Lead at EHC - European Haemophilia Consortium, reposted from EHC…
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
Aug 26, 2025, 09:27 | Insight
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
The European Haemophilia Consortium (EHC), has shared a post on X: “EHC Think Tank releases…
Call for Global Action on Bleeding Disorders from Baumann, Christoforou and Klamroth
Aug 15, 2025, 03:44 | Voices
Call for Global Action on Bleeding Disorders from Baumann, Christoforou and Klamroth
Kedrion Biopharma shared an insightful post on LiknedIn: “Global voices on bleeding disorders: from awareness…
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
Aug 10, 2025, 06:59 | Organizations
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
World Federation of Hemophilia (WFH) recently shared on LinkedIn: ''Today, the WFH is participating in…
Julia Rauscher and Cathy Verbraeken Lead EHC Workshop on Best Practices
Aug 5, 2025, 04:02 | Insight
Julia Rauscher and Cathy Verbraeken Lead EHC Workshop on Best Practices
The European Haemophilia Consortium shared a proud post on X: “Building stronger communities starts with collaboration!…
William McKeown: Once or Twice Weekly Altuvoct? Insights
Jul 31, 2025, 16:28 | Insight
William McKeown: Once or Twice Weekly Altuvoct? Insights
William McKeown, an EHC Steering Committee Member, has recently posted on X: “Altuvoct is now…
Wolfgang Miesbach: Protecting Liver Health in Bleeding Disorders
Jul 31, 2025, 15:12 | Science
Wolfgang Miesbach: Protecting Liver Health in Bleeding Disorders
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a proud post on LinkedIn:…
EHC Youth Fellowship Internship—Apply by August 4
Jul 30, 2025, 16:51 | Insight
EHC Youth Fellowship Internship—Apply by August 4
The European Haemophilia Consortium (EHC) shared a post on X: ”Join the EHC as Project…
World Hepatitis Day: Prioritizing Liver Health in Bleeding Disorders
Jul 28, 2025, 12:19 | Science
World Hepatitis Day: Prioritizing Liver Health in Bleeding Disorders
The European Haemophilia Consortium (EHC) shared a post on X: “1M+ lives lost yearly to…
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
Jul 23, 2025, 10:59 | Organizations
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
  The European Haemophilia Consortium (EHC) shared a post on X: “Supply delays of Von…
EHC Annual Report is Here! Explore the Highlights and Discover the Road Ahead
Jul 19, 2025, 15:00 | Organizations
EHC Annual Report is Here! Explore the Highlights and Discover the Road Ahead
The European Haemophilia Consortium (EHC) shared an announcement on X: ''Our Annual Report 2024 is…
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
Jul 18, 2025, 11:29 | Organizations
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
The European Haemophilia Consortium (EHC), has shared a post on X: “Apply for our Health…
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
Jul 11, 2025, 18:19 | Organizations
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
The European Haemophilia Consortium (EHC) shared an encouraging post on X: ''Help shape the future…
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
Jul 10, 2025, 18:11 | Organizations
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
The European Haemophilia Consortium (EHC) recently shared a post on X: ''Von Willebrand Disease affects 1:1000…
EHC and EUPATI Partner to Advance Patient Education and Engagement in Therapeutic Innovation
Jul 7, 2025, 18:36 | Organizations
EHC and EUPATI Partner to Advance Patient Education and Engagement in Therapeutic Innovation
The European Haemophilia Consortium (EHC) recently shared an announcement post on X: ''EHC has partnered…
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
Jul 6, 2025, 15:02 | Voices
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
The European Haemophilia Consortium shared a post on X: “Time to make Patients critical to…
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
Jul 4, 2025, 17:02 | Organizations
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
The European Haemophilia Consortium shared a thrilled post on advancing advocacy on X: ''Great to…
EHC 2025 to Spotlight Innovations in von Willebrand Disease Care
Jul 4, 2025, 15:50 | Organizations
EHC 2025 to Spotlight Innovations in von Willebrand Disease Care
The European Haemophilia Consortium shared a post on X: “Exciting developments for Von Willebrand Disease…
Welcoming Opposition to ISTH 2025: EHC Highlights the Crucial Role of Modern Treatments in Hemophilia Management
Jun 26, 2025, 12:58 | Organizations
Welcoming Opposition to ISTH 2025: EHC Highlights the Crucial Role of Modern Treatments in Hemophilia Management
The European Haemophilia Consortium shared a post on X: ''The EHC attended ISTH 2025, where…
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
May 27, 2025, 14:34 | Voices
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
EHC_Haemophilia — shared on X: "Join the EHC ERIN Webinar on Addressing the Needs of…
Brian O Mahony Highlights WFH Workshop on Novel Therapies in Hemophilia at Phnom Penh Humanitarian Meeting 2025
May 26, 2025, 12:47 | Organizations
Brian O Mahony Highlights WFH Workshop on Novel Therapies in Hemophilia at Phnom Penh Humanitarian Meeting 2025
Brian O Mahony, The CEO of Irish Haemophilia Society, former President of The World Federation of…
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
May 10, 2025, 12:49 | Voices
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
The European Haemophilia Consortium shared a post on X: "Join the EHC ERIN Webinar on…
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
May 10, 2025, 09:46 | Voices
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
The European Haemophilia Consortium (EHC) shared a post on X: "EHC Steering Committee Member Marius…
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