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The Marfan Foundation

Stacey Black Watson: A Meaningful Gathering Focused on Genetic Aortic and Vascular Conditions
May 27, 2026, 14:30 | Voices
Stacey Black Watson: A Meaningful Gathering Focused on Genetic Aortic and Vascular Conditions
Stacey Black Watson, Director of Loeys-Dietz and Marfan Programs at the The Marfan Foundation, shared…
Julie De Backer: Discussing Precision Aortic Medicine at the World Heart Federation Meeting
May 21, 2026, 12:25 | Voices
Julie De Backer: Discussing Precision Aortic Medicine at the World Heart Federation Meeting
Julie De Backer, Professor at Ghent University, Deputy Editor at American Heart Association, Nucleus member…
Walk for Victory Is Coming to a Community Near You in the Weeks Ahead - The Marfan Foundation
Apr 25, 2026, 15:04 | Organizations
Walk for Victory Is Coming to a Community Near You in the Weeks Ahead - The Marfan Foundation
The Marfan Foundation shared a post on LinkedIn: "Walk for Victory is coming to a…
Shaine Morris: Save the Date for the Texas Children's Hospital Second Pediatric Aortopathy Symposium
Mar 7, 2026, 14:48 | Voices
Shaine Morris: Save the Date for the Texas Children's Hospital Second Pediatric Aortopathy Symposium
Shaine Morris, Pediatric Cardiologist at Texas Children’s Hospital and at Baylor College of Medicine, shared…
Heghine Khachatryan: We Already Have The Knowledge Not to Overlook Rare Diseases
Feb 9, 2026, 14:45 | Voices
Heghine Khachatryan: We Already Have The Knowledge Not to Overlook Rare Diseases
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology…
The Marfan Foundation Raises Awareness: Joaquin Ramos’ Life-Saving Experience with Aortic Dissection
Sep 16, 2025, 07:36 | Voices
The Marfan Foundation Raises Awareness: Joaquin Ramos’ Life-Saving Experience with Aortic Dissection
   The Marfan Foundation posted on LinkedIn: ''Opinion: STAT action saved my life, it could…
Aortic Dissection Awareness: Marfan Foundation Shares Key Warning Signs
Sep 12, 2025, 05:27 | Organizations
Aortic Dissection Awareness: Marfan Foundation Shares Key Warning Signs
The Marfan Foundation has shared a post on LinkedIn: “Throughout the month of September, we're…
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