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Ify Osunkwo: How the Sickle Cell Community Can Influence FDA Drug Development Priorities
Ify Osunkwo/LinkedIn
Nov 15, 2026, 10:17

Ify Osunkwo: How the Sickle Cell Community Can Influence FDA Drug Development Priorities

Ify Osunkwo, Managing Partner at AWNI Advisory, shared a post on LinkedIn:

“Your voice. Your experience. Your future.

Will you be counted?

We have an opportunity to help shape how new treatments are developed for sickle cell disease (SCD).

What?

A 10-minute survey to better understand the burden of SCD, unmet needs and treatment priorities of warriors and caregivers.

Followed by a virtual meeting on January 27, 2027, where the FDA and other regulators will hear directly from the SCD community.

Why?

Because the people living with SCD should help define what better treatments look like and what outcomes matter most.

The more voices we bring together, the stronger our collective message.

There is power in numbers!

How can you help?

Complete the survey and share it with fellow warriors and caregivers.

Sign up and attend the virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting.

January 27, 2027 | 11 AM–3 PM ET

Our goal:

  • 1,000 survey responses
  • 500 warriors participating virtually

We cannot expect treatments to reflect our priorities if our voices are missing from the conversation.

Will you be counted?”

Stay updated with Hemostasis Today.

Ify Osunkwo
NewsFeed