The European Haemophilia Consortium / X
Jul 1, 2025, 18:13
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
The European Haemophilia Consortium recently shared a post on X:
”We had a meaningful day advocating for patients with bleeding disorders at the 5th HTA Stakeholder Meeting:
– Patients must be co-creators, not bystanders;
– Training is key–patient experts need the right tools;
– Metrics matter–patients should have a voice in what’s measured.”
At the 5th Health Technology Assessment-HTA Stakeholder Meeting, EHC made one thing clear: patients are not passive participants—they are partners in progress.
Here is what the day reinforced:
- HTA can’t afford to be a closed-door process. People living with bleeding disorders must be involved from the start—not as an afterthought, but as co-authors of the system that evaluates their care.
- What gets measured gets valued. Patients deserve a voice in defining what outcomes truly matter, beyond charts and cost curves.
Overall, this meeting was a reminder that HTA isn’t just about cost-effectiveness. It’s about people.
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