Sophia Delicou: How Does Lifelong Transfusion Therapy Affect Everyday Life of Adults with Hemoglobinopathies
Sophia Delicou, Clinical Hematologist and Head of the Thalassemia and Sickle Cell Unit at Hippocration General Hospital, Athens, shared on LinkedIn about a recent article she and her colleagues co-authored, published in Transfusion Clinique et Biologique:
”New Publication
How does lifelong transfusion therapy affect the everyday life of adults with hemoglobinopathies?
Our newly published article, ‘Quality of life in patients with transfusion-dependent hemoglobinopathies: evidence from an Expert Center in Greece,’ highlights the real-world burden of chronic transfusion care, as reported directly by patients.
The study sheds light on key challenges such as frequent hospital visits, treatment adherence, monitoring of iron overload, and ongoing concerns about blood availability, issues that significantly shape daily life beyond clinical outcomes.
Listening to patients’ experiences is essential for developing more organized, patient-centered, and sustainable care pathways.”
Title: Quality of life in patients with transfusion-dependent hemoglobinopathies: evidence from an Expert Centre in Greece
Authors: Sophia Delicou, Aikaterini Xydaki, Maria Moraki, Natalia Karantzanou, Clive Richardson, Constantina Politis
Read the Full Article on Transfusion Clinique et Biologique
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