New WECARE Study Highlights the Real-World Challenges of Living with Hemophilia – WFH
World Federation of Hemophilia (WFH) shared a post on LinkedIn about a recent article by Mridul Makkar, adding:
“New research supported by the WFH World Bleeding Disorders Registry (WBDR) Research Support Program has been published in Haemophilia, the official journal of the WFH.
The WECARE study highlights the personal, social, and economic challenges faced by people living with hemophilia and their caregivers, from chronic pain and disrupted education or work to financial strain and stigma.
Findings like these help strengthen the case for more holistic care that supports the full realities of living with bleeding disorders.”
Title: Personal, Social, Economic Impacts on Haemophilia A Patients and Caregivers: A Mixed Method Study (WE CARE)
Authors: Mridul Makkar, M Joseph John, Diksha Sarwan, Soumya Ojha, Ranjit Injety, Manasi Gupta, Himanshu Aggarwal
Read the Full Article on Haemophilia
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