Satyam Arora: Improving Thalassaemia Care in India Through Ground-Level Data
Satyam Arora, Regional Director for South East Asia at the International Society of Blood Transfusion, shared a post on LinkedIn:
“Great to see our team work being recognised and publicised.
There is growing need to have real ground level data for assessment of the gaps and new targets for future to improve our services to Thalassemia patients in India.”
International Society of Blood Transfusion (ISBT) shared a post on LinkedIn:
“Recently published in Vox Sanguinis
Assessment of services for diagnosis, management, and prevention of thalassemia in India – the way forward
India manages one of the world’s largest populations with thalassemia major, and this original study highlights:
- The need for a unified national registry to guide planning and policy.
- Expansion of government-led programs improving access to leukodepleted transfusions, iron chelation, bone marrow transplants, and prenatal diagnosis.
- Persistent out-of-pocket costs for families and regional disparities, emphasizing the importance of equitable resource allocation.
A must-read for anyone working in thalassemia care, public health, and healthcare policy.”
Title: Assessment of services for diagnosis, management and prevention of thalassaemia in India: The way forward
Authors: Nita Radhakrishnan, Jagdish Chandra, Mamta Manglani, Amita Trehan, J.S. Arora, Shobha Tuli
Read the Full Article on Vox Sanguinis
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