Derick Rugenga: Every Person Living with Haemophilia Deserves to Live Without Fear
Derick Rugenga, Haemophilia Nurse at Kitete Regional Referral Hospital, shared on LinkedIn:
”Last month, during World Hemophilia Day, I reflected deeply on the realities faced by people living with Hemophilia and other bleeding disorders.
As a healthcare professional, I have witnessed the challenges many patients continue to face – delayed emergency care, limited community awareness, stigma, and difficulty accessing essential treatment, especially Factor IX medication for patients with Hemophilia B.
One of the most painful experiences has been encountering children who stopped attending school because of fear of injuries, bleeding episodes, or being misunderstood by others.
No child should lose their education or confidence because of a medical condition.
Despite ongoing efforts to improve care and support, many families still struggle to access timely diagnosis, treatment, and specialized services especially in rural areas .
Awareness in schools and communities remains limited, and many people continue to suffer silently.
This reminded me that advocacy must continue beyond awareness days.
We need:
- Better access to emergency care and clotting factor treatment
- Increased awareness in schools and communities
- Stronger support systems for patients and caregivers
- Inclusion and protection for children living with haemophilia
- Continued investment in healthcare services for rare bleeding disorders
Every person living with haemophilia deserves dignity, timely care, education, and the opportunity to live without fear.”
Stay updated with Hemostasis Today.
-
May 12, 2026, 16:46Tagreed Alkaltham: Why Apheresis Matters in Modern Transfusion Medicine
-
May 12, 2026, 16:37Reinhold Kreutz: Cardiovascular Burden in Acute Intermittent Porphyria Needs Greater Awareness
-
May 12, 2026, 16:33Pablo Corral: The Truth About Very Low LDL-Cholesterol
-
May 12, 2026, 16:24Mildred Lundgren: We Must Talk About the Invisible Causes of Stroke
-
May 12, 2026, 16:17Irene Scala: The Sex Disparities In Access to Acute Stroke Treatments In Italy
-
May 12, 2026, 16:04May Nour: UCLA Health Mobile Stroke Unit Becomes The 1st In The World to Perform mCTA In the Field
-
May 12, 2026, 15:57Leonardo Roever: Prognostic Impact of Lipoprotein(a) and CAR in Elderly Acute Ischemic Stroke Patients
-
May 12, 2026, 15:54Bruno Pougault: Prioritizing Laboratory Tests in Resource-Limited Emergency Care
-
May 12, 2026, 15:37Jennifer Holter Chakrabarty: Supporting the Next Generation of Hematology Researchers