Giuseppe Leone: Sickle Cell Disease and Transfusion-Dependent β-Thalassemia in Adults
Giuseppe Leone, Editor in Chief on Mediterranean Journal of Hematology and Infectious Diseases at Università Cattolica, Facoltà di Medicina, shared a post on LinkedIn about a recent article by Sophia Delicou et al., published in Mediterranean Journal of Hematology and Infectious Diseases, adding:
“Sickle cell disease (SCD) and transfusion-dependent β-thalassemia have transitioned from being mostly pediatric conditions to complicated, chronic disorders characterized by advancing multi-organ complications.
End-of-life care for these patients remains poorly developed and is applied sporadically, despite clear needs.
This review by an authoritative Greek author examines EOL treatment for hemoglobinopathies, focusing on symptom management, ethical difficulties, and psychosocial-spiritual support.”
Title: End-of-Life Care in Sickle Cell Disease and Transfusion-Dependent β-Thalassemia: Clinical, Psychological, and Ethical Considerations
Authors: Sophia Delicou, Katerina Xydaki, Maria Moraki, Theodoros Aforozis
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