Ruth Fein: The Patient Impact of Transfusion Dependence in Myelofibrosis
Ruth Fein, Freelance Writer/Editor and Content/Communications Strategist at rfrwrites.com, shared a post on LinkedIn about a recent article she and her colleagues co-authored, published in BMC Cancer, adding:
“I am very excited to share this important patient-reported international study finally published last week.
I had the privilege of co-authoring it and co-presenting it in a 2024 ASH poster session with Thomas LeBlanc, MD.
The interviews reflect both the perceived and experienced impacts of transfusion dependence in myelofibrosis patients living with anemia.
While clearly being dependent on blood transfusions is a significant emotional, physical and financial burden, the patient voices here bring light to the stress and anxiety of simply knowing you could become transfusion dependent – even if you have never needed one.
A personal thanks to all those affected by MF who participated.
Your willingness to candidly share your experiences living with anemia (along with your perceptions and fears about transfusions) are a meaningful contribution to the MF community.”
Title: Perceived and experienced impacts of anemia and transfusion dependence in myelofibrosis: a mixed-methods study
Authors: Anna Cardellino, Hannah Collacott, Shiyuan Zhang, Vicky Turner, Kelesitse Phiri, Ned Weinshenker, Ruth Fein Revell, Dwaipayan Patnaik, Valentín García-Gutiérrez, Thomas W. LeBlanc, Melissa Ross
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