A New Era of Hemophilia Screening and Diagnosis in Women and Girls – ISTH
International Society on Thrombosis and Haemostasis (ISTH), shared a post on LinkedIn about a recent article by Lakshmi Srivaths et al., published in JTH, adding:
“The impact of hemophilia in women and girls remains insufficiently recognized, contributing to delayed diagnosis, under-evaluation of bleeding symptoms and missed opportunities for appropriate management.
New guidance from the ISTH Scientific and Standardization Committee (SSC), now published in Journal of Thrombosis and Haemostasis (JTH), provides recommendations to help standardize the screening and diagnosis of hemophilia carriers and women and girls with hemophilia.
Developed collaboratively across the ISTH SSC Subcommittees on Pediatric and Neonatal Thrombosis and Haemostasis; factor VIII, factor IX and rare coagulation disorders; and Women’s Health Issues in Thrombosis and Haemostasis, the guidance addresses:
- Nomenclature and classification.
- Use of the ISTH-Bleeding Assessment Tool to quantify bleeding phenotype.
- FVIII and FIX assays and assay discrepancies.
- Genetic testing.
- Testing during pregnancy and postpartum.
By supporting more consistent screening and diagnosis globally, this guidance represents an important step toward improving management and advancing gender equity in hemophilia care.”
Title: The diagnosis and evaluation of women and girls with hemophilia and hemophilia carriers: guidance from the SSC of the ISTH
Authors: Lakshmi Srivaths, Jesus Ardila, Karin Fijnvandraat, Karin van Galen, Paula James, Joanna Larson, Susan Shapiro, Robert Sidonio, Miguel Escobar
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