Clara N.: A United Effort to Reduce the Burden of SCD in Uganda
Clara N., Executive Director at Sickle Cell Health Care Organisation, shared a post on LinkedIn:
“Yesterday I was part of the few members heading different civil society organizations led by Isaac Okello ,who sat in a high engagement meeting with the state minister of health in charge of Primary health care, at Ministry of Health (Uganda) PHEOC discussing how best civil society organizations like Sickle cell health care organisation can engage fully in helping reduce or even erase the burden of Sickle cell disease in Uganda.
A number of things were discussed at a national level and I pray for better out comes for warriors across Uganda, especially access to essential medicines and care and on time.
He appreciated snd emphasized the fact that sickle cell disease is AZ huge monster which cannot just be managed by one or two people or just the government but with joined efforts.
CSOs, government, traditional leaders, local leaders, the church, the Moslem community, schools and and if fact everyone.
Know your genotype, make informed decisions. ”
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