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ITP Is More Than a Platelet Count: Why Patient Perspectives Matter – ITP Australia and New Zealand

ITP Australia and New Zealand/LinkedIn

Nov 11, 2026, 14:45

ITP Is More Than a Platelet Count: Why Patient Perspectives Matter – ITP Australia and New Zealand

ITP Australia and New Zealand shared a post on LinkedIn:

”What if we stopped asking, ‘How are your platelet counts?’ and started asking, ‘How are you?’

At the recent Blood 2026 ITP and PNH Symposium, our CEO, Danielle Boyle, who has lived with ITP for more than a decade, joined international experts to discuss the realities of living with ITP beyond the blood test results.

One message stood out clearly:

ITP is more than a platelet count.

Many patients leave appointments wanting to discuss:

Fatigue and energy levels
The impact of treatment on daily life
Work, study, and family responsibilities
Mental wellbeing and uncertainty
Personal goals and priorities
The things that matter most to them as individuals

The challenge is that these conversations don’t always happen.

The ‘4 Questions for Healthcare Professionals’ resource encourages a broader discussion during consultations and helps ensure patient-centred care extends beyond laboratory values and bleeding symptoms.

Because understanding:

how a patient is functioning
how they are coping
what their goals are
what challenges they are facing

is often just as important as understanding their latest platelet count.

For healthcare professionals, researchers, and industry partners, it is a timely reminder that meaningful care begins with meaningful conversations.

View the resource.

What is one question you think healthcare professionals should be asking more often when supporting people living with chronic conditions such as ITP?”

ITP Is More Than a Platelet Count: Why Patient Perspectives Matter - ITP Australia and New Zealand