NBCA Insights with Erin VanDyke: Revealing Gaps in Blood Clot Diagnosis and Support
Erin VanDyke, Vice President of NBCA Centers of Excellence, posted on LinkedIn:
“As data continues to evolve and we refine how we risk stratify VTE patients, build programs, and ensure follow-up aligned with best practice, it’s important not to lose sight of a critical piece of the puzzle: the patient voice.
Patients can often see gaps in care that the data doesn’t capture.
Their lived experience provides invaluable perspective that can guide us toward meaningful improvements.
By actively listening to their feedback and involving them in decision-making, we have the opportunity to deliver care that is not only evidence-based, but also patient-centered.
The science will keep moving forward—but let’s make sure our patients are moving forward with us. ”
Quoting National Blood Clot Alliance’s post:
“Your voice is shaping blood clot care!
In 2023, NBCA launched the first large-scale, international survey to capture blood clot patient experiences and identify gaps in care.
We continue to be grateful to the more than 1,050 survivors who took the survey. Your voice is being heard and prioritized by the medical community at the highest levels. The data has been:
- Presented at Argon Medical’s Venous Experts Symposium last week
- Listed in ScienceDirect, a platform used by hospitals, universities, and researchers around the world
- Presented at the 2024 American Society of Hematology annual conference
- Published in the peer-reviewed journal Blood Vessels, Thrombosis and Hemostasis
Key findings:
- Only 55% were satisfied with how their diagnosis was explained
- 1 in 3 reported misdiagnosis, often requiring multiple visits
- Just 15% received written/electronic info at diagnosis. Most wanted guidance on recurrence, mental health, prevention strategies, and patient support, but only 2% received this information.
Read more here.”
Stay informed with Hemostasis Today.
-
Oct 8, 2025, 03:07Stroke Education By Rodrigo Guerrero - On Unilateral, Nonprogressive Stenosis
-
Oct 7, 2025, 15:015 Simple Exercises By Christina P. That Support Health in Antiphospholipid Syndrome
-
Oct 7, 2025, 14:39Dr Amid Karad: Help Raise Awareness on Evidence-Based INR Management for Diverse Indications
-
Oct 7, 2025, 14:27NBCA Insights with Erin VanDyke: Revealing Gaps in Blood Clot Diagnosis and Support
-
Oct 7, 2025, 14:26Caitlin Raymond: When to Use Albumin vs. Plasma, and Why the Timing Matters
-
Oct 8, 2025, 04:50Christopher Cannon Shares A Study Showing No Benefit When Adding an Antiplatelet to Anticoagulant in Stroke with AF and Atherosclerosis
-
Oct 8, 2025, 04:41Claudio Laudani: We Summarize Current Knowledge and Future Perspectives On The Role of Inflammation in Patients with MI
-
Oct 8, 2025, 04:03José Antonio García Erce: Honored For Publishing in SANGRE Magazine
-
Oct 8, 2025, 03:57Mattia Galli On Genomadix Cube Test: A Rapid Genetic Test to Predict The Response to Clopidogrel
-
Oct 8, 2025, 03:54Rory R Koenen on Platelet-Derived Extracellular Vesicle Analogues from Lyophilized Platelets
-
Oct 7, 2025, 13:06Bobur Kholikov on iFlash Thrombosis Panel – D-Dimer
-
Oct 7, 2025, 03:502025 Nobel Prize: A Milestone for Autoimmunity Research - Awarded to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi
-
Oct 3, 2025, 15:31Anirban Sen Gupta and Andrew Shoffstall Collaboration on Bioinspired Synthetic Platelet Systems for Brain Injury Treatment
-
Oct 3, 2025, 15:07Shai Shen-Orr: Excited to Share that The Human Immunome Project (HIP) Has Launched Its Scientific Partner Network
-
Oct 2, 2025, 04:59Caterina Casari - Prizes for Innovators 2025 Winner!
-
Oct 8, 2025, 04:45Reza Shojaei: On The 2nd Day of IPAW 2025, Let's Focus on Patients, The Real Reason Plasma Matters!
-
Oct 7, 2025, 08:29“48 Poems on 48 Blood Group Systems” - Dr Bhavyaa Beriwal Blends Science and Poetry in Her New Transfusion Medicine Book
-
Oct 7, 2025, 04:35Hema Tallman: During IPAW, We Honor The Unseen Heroes – Plasma Donors
-
Oct 7, 2025, 04:09Svenja Tatjana Barckhausen: Reducing Reliance on U.S. Plasma – Not Just for Europe, But for The World!
-
Oct 7, 2025, 03:58Louise Bannon: Don’t Wait Until You’re Diagnosed to Learn About Blood Clots