EHC/LinkedIn
May 20, 2026, 14:14
Living With von Willebrand Disease? – Share Your Experience – EHC
EHC – European Haemophilia Consortium shared a post on LinkedIn:
“If you’re living with von Willebrand Disease (VWD), we want to hear from you!
Sharing your experience will help us understand access to care across Europe, diagnostic timelines, and the mental health of people with VWD.
For: People with von Willebrand Disease
Your input will help us:
- Identify gaps in care and shape improvements in Europe;
- Understand diagnostic timelines more clearly;
- Assess mental health among people living with VWD.
Available in 13 languages
Deadline: 7 September 2026
Thank you for helping us improve care and support for people living with VWD.”
Other posts featuring EHC on Hemostasis Today.
-
Jul 3, 2026, 05:55New Evidence Supports Chromogenic Assays After Hemophilia A Gene Therapy – JTH
-
Jul 3, 2026, 05:50Jacopo Parizzi: Roche’s Non-Malignant Hematology Team Is Looking Ahead to 2027
-
Jul 3, 2026, 05:25Brian A Beh: A New Approach from The George Institute for Global Health Could Transform Stroke Care Before Hospital Arrival
-
Jul 3, 2026, 05:22Deirdre Finnigan: New Insights into Red Blood Cell Biomechanics in Cancer-Associated Anemia
-
Jul 3, 2026, 05:15Danielle Boyle: Collaboration Across Borders Is Helping Shape the Future of ITP Care
-
Jul 3, 2026, 05:05Claire McIvor: One Year at the Stroke Association and Grateful for a Workplace That Made It Possible
-
Jul 2, 2026, 23:11Michael Makris: Join The Cancer Associated Thrombosis Workshop at ISTH 2026
-
Jul 2, 2026, 21:54Rob Maloney: Rare Disease Requires Relational Care
-
Jul 2, 2026, 21:53Quintijn Bonnez: How ADAMTS13 Conformation May Predict Early Relapse and Guide Pre-Emptive Therapy