EHC/LinkedIn
May 20, 2026, 14:14
Living With von Willebrand Disease? – Share Your Experience – EHC
EHC – European Haemophilia Consortium shared a post on LinkedIn:
“If you’re living with von Willebrand Disease (VWD), we want to hear from you!
Sharing your experience will help us understand access to care across Europe, diagnostic timelines, and the mental health of people with VWD.
For: People with von Willebrand Disease
Your input will help us:
- Identify gaps in care and shape improvements in Europe;
- Understand diagnostic timelines more clearly;
- Assess mental health among people living with VWD.
Available in 13 languages
Deadline: 7 September 2026
Thank you for helping us improve care and support for people living with VWD.”

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