World Federation of Hemophilia / Fédération mondiale de l'hémophilie/LinkedIn
Oct 18, 2025, 11:15
Gene Therapy Data at Risk – WFH Advocates for Global Preservation Through GTR
World Federation of Hemophilia / Fédération mondiale de l’hémophilie posted on LinkedIn:
” Nearly 400 people with hemophilia joined Gene Therapy trials, sharing their data to help future generations. If companies do not commit to preserve Gene Therapy data in one global database, that data becomes far less useful. The WFH Gene Therapy Registry (GTR) offers a global solution to safeguard this data and honor those contributions.
Read more about why data preservation is both a scientific and ethical imperative.”
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