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February, 2026
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Bleeding Disorder

Can we Boost Emicizumab Without Increasing Thrombosis Risk? - RPTH Journal
Feb 14, 2026, 16:56 | Voices
Can we Boost Emicizumab Without Increasing Thrombosis Risk? - RPTH Journal
RPTH Journal shared a post on LinkedIn: ''Can we boost emicizumab without increasing thrombosis risk?…
Ageing With a Bleeding Disorder: Learn More About Healthy Ageing With EHC
Jan 5, 2026, 05:59 | Organizations
Ageing With a Bleeding Disorder: Learn More About Healthy Ageing With EHC
EHC - European Haemophilia Consortium reposted ERN-EuroBloodNe's post on LinkedIn: "Registration is open! Join us in…
Shashwat Hospitals: Awareness and Early Screening vWD are the Key to Preventing Avoidable Bleeding Complications
Dec 27, 2025, 08:34 | Organizations
Shashwat Hospitals: Awareness and Early Screening vWD are the Key to Preventing Avoidable Bleeding Complications
Shashwat Hospitals posted on LinkedIn: "Von Willebrand Disease is the most common inherited bleeding disorder, yet…
Comparison of LTA in Patients with Bleeding Disorder of Unknown Cause and Healthy Blood Donors - Now on RPTH Journal
Dec 17, 2025, 04:04 | Science
Comparison of LTA in Patients with Bleeding Disorder of Unknown Cause and Healthy Blood Donors - Now on RPTH Journal
RPTH Journal shared a post on LinkedIn: "A new study reassesses guideline-recommended agonist concentrations for light…
25 Years of Impact: Dr. Assad E. Haffar’s Commitment to Advancing Bleeding Disorder Care
Nov 21, 2025, 06:03 | Insight
25 Years of Impact: Dr. Assad E. Haffar’s Commitment to Advancing Bleeding Disorder Care
WFH shared a post on X: "For over 25 years, Assad E. Haffar has worked…
William Aird - VWD: Most Common Inherited Bleeding Disorder
Nov 12, 2025, 06:25 | Science
William Aird - VWD: Most Common Inherited Bleeding Disorder
William Aird, Professor of Medicine at Harvard Medical School, shared a post on X: "vWD Most…
Omid Seidizadeh: Haematologica to publish a special series marking 100 years of VWD
Nov 6, 2025, 04:39 | Science
Omid Seidizadeh: Haematologica to publish a special series marking 100 years of VWD
Omid Seidizadeh, Research Leader of the A. Bianchi Bonomi Hemophilia and Thrombosis Center, reposted from EAHAD on LinkedIn: ”I’m…
Advancing Gene Therapy Research for Hemophilia A at MCW
Oct 23, 2025, 09:56 | Science
Advancing Gene Therapy Research for Hemophilia A at MCW
Kristi Castello, Division Administrator III at the Medical College of Wisconsin, reposted from Medical College…
Gene Therapy Data at Risk - WFH Advocates for Global Preservation Through GTR
Oct 18, 2025, 11:15 | Insight
Gene Therapy Data at Risk - WFH Advocates for Global Preservation Through GTR
  World Federation of Hemophilia / Fédération mondiale de l'hémophilie posted on LinkedIn: '' Nearly…
Unmasking BDUC: Johanna Gebhart’s Call for Change at EHC 2025
Oct 16, 2025, 06:03 | Science
Unmasking BDUC: Johanna Gebhart’s Call for Change at EHC 2025
  Johanna Gebhart, Associate Professor and Haemostasis Expert at the Medical University of Vienna, shared …
Khalid Habaybia: This Conference Provided an Exceptional Opportunity to Share Knowledge and Exchange Best Practices
Oct 13, 2025, 04:46 | Organizations
Khalid Habaybia: This Conference Provided an Exceptional Opportunity to Share Knowledge and Exchange Best Practices
Khalid Habaybia, Unit Manager at Tawam Hospital, shared a post on LinkedIn: ”4th International Hemophilia…
Deborah Wild: Thrilled to See GeneVentiv Selected for The NIH NHLBI Catalyze Program
Oct 11, 2025, 08:48 | Science
Deborah Wild: Thrilled to See GeneVentiv Selected for The NIH NHLBI Catalyze Program
Deborah Wild, CEO, Executive Board Member, and Leadership Coach, reposted from Damon Race on LinkedIn:…
Glanzmann Thrombasthenia Support Group Marks 18 Years Of Connection And Announces Next Chapter For The GRF
Oct 10, 2025, 16:09 | Organizations
Glanzmann Thrombasthenia Support Group Marks 18 Years Of Connection And Announces Next Chapter For The GRF
  Glanzmann's Research Foundation posted on LinkedIn: ''Today marks 18 years of the Glanzmann Thrombasthenia…
WHO Expands Essential Medicines List for Hemophilia and VWD
Oct 9, 2025, 13:12 | Organizations
WHO Expands Essential Medicines List for Hemophilia and VWD
World Federation of Hemophilia shared a post on LinkedIn: “WFH advocacy made history: the WHO…
Magy Abdelwahab: High Incidence Of Intracranial Haemorrhage In Egyptian Children With Congenital Afibrinogenaemia
Oct 8, 2025, 12:50 | Insight
Magy Abdelwahab: High Incidence Of Intracranial Haemorrhage In Egyptian Children With Congenital Afibrinogenaemia
  Magy Abdelwahab, Pediatric Hematology Professor at Cairo University Pediatric Hospital, posted on LinkedIn: ''Cerebral…
Menstrual Health Challenges in Women with SEND: Insights from Kristel Van Wauwe and UK Studies
Oct 7, 2025, 14:02 | Insight
Menstrual Health Challenges in Women with SEND: Insights from Kristel Van Wauwe and UK Studies
  Kristel Van Wauwe, SEND Quality Assurance Officer at Green Corridor, posted on LinkedIn: ''Research…
WFH PACT Program Transforms Bleeding Disorder Training and Outreach Across Senegal
Oct 5, 2025, 11:55 | Organizations
WFH PACT Program Transforms Bleeding Disorder Training and Outreach Across Senegal
World Federation of Hemophilia shared a post on LinkedIn: "The WFH team recently visited Senegal…
Emicizumab Approvals in Europe: European Haemophilia Consortium Shares Key Updates
Oct 1, 2025, 16:30 | Organizations
Emicizumab Approvals in Europe: European Haemophilia Consortium Shares Key Updates
  European Haemophilia Consortium (EHC) posted on LinkedIn: ''Indications of non-factor treatments for haemophilia A…
Suthesh Sivapalaratnam: Proud of the Team for This Letter on the Management of Pregnancy and Childbirth in Glanzmann Thrombasthenia
Sep 28, 2025, 11:25 | Science
Suthesh Sivapalaratnam: Proud of the Team for This Letter on the Management of Pregnancy and Childbirth in Glanzmann Thrombasthenia
Suthesh Sivapalaratnam, Clinical Senior Lecturer in Paediatric and Adult Haemostasis and Thrombosis at the Royal…
WHO Updates Essential Medicines List for Hemophilia
Sep 23, 2025, 06:42 | Organizations
WHO Updates Essential Medicines List for Hemophilia
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of RPTH…
Hemophilia Care in Syria: WFH Helps 10-Year-Old Gadir Live Pain-Free
Sep 21, 2025, 14:39 | Organizations
Hemophilia Care in Syria: WFH Helps 10-Year-Old Gadir Live Pain-Free
  World Federation of Hemophilia (WFH) posted on LinkedIn: ''For years, 10-year-old Gadir from Syria…
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
Sep 20, 2025, 14:51 | Blog
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
  William McKeown, Geriatrician at National Hemophilia Centre, posted on X: ''Excited to be off…
Deborah Glasser: Nasdaq Bell Celebrating FDA Approval of Novel ITP Therapy
Sep 20, 2025, 13:35 | Organizations
Deborah Glasser: Nasdaq Bell Celebrating FDA Approval of Novel ITP Therapy
Deborah Glasser, Head of Specialty Care for Sanofi, shared a post on LinkedIn: ”Yesterday, I…
Understanding Fibrinogen Disorders: New Resource from the World Federation of Hemophilia
Sep 18, 2025, 10:31 | Organizations
Understanding Fibrinogen Disorders: New Resource from the World Federation of Hemophilia
WFH (World Federation of Hemophilia) shared on X: ”Did you know that both men and…
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
Sep 18, 2025, 09:18 | Voices
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
The World Federation of Hemophilia (WFH) posted on LinkedIn: ”WFH Vice President, Medical, Glenn Pierce,…
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Sep 18, 2025, 09:15 | Science
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Paul Batty, Associate Professor at University College London and Honorary Consultant in Haemostasis and Thrombosis…
Sep 18, 2025, 07:02 | Voices
Abdul Mannan: Embracing Failure as a Teacher in the Journey Through Medicine
Abdul Mannan, Consultant Haematologist at Betsi Cadwaladr University Health Board, shared on LinkedIn: “My journey in…
Von Willebrand Disease: Bridging the Evidence Gap with a Call to Action for Equitable Care
Sep 12, 2025, 12:58 | Science
Von Willebrand Disease: Bridging the Evidence Gap with a Call to Action for Equitable Care
Nathan Connell, Hematologist at Harvard Medical School, shared a post on LinkedIn: "Thank you to…
Michael Makris on WHO’s Essential Medicines List Update: A Win for the Global Haemophilia Community
Sep 8, 2025, 15:10 | Voices
Michael Makris on WHO’s Essential Medicines List Update: A Win for the Global Haemophilia Community
   Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief…
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
Sep 8, 2025, 14:26 | Voices
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
  The European Haemophilia Consortium (EHC Haemophilia) posted on X: ''This World PT Day, we…
Brian O Mahony: WHO Adopts WFH Recommendations in 2025 Essential Medicines List
Sep 8, 2025, 14:24 | Organizations
Brian O Mahony: WHO Adopts WFH Recommendations in 2025 Essential Medicines List
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Breakthrough in Blood: Cécile Denis and INSERM Team Develop Nanobody Therapy for Type 1 VWD
Sep 7, 2025, 14:13 | Innovation
Breakthrough in Blood: Cécile Denis and INSERM Team Develop Nanobody Therapy for Type 1 VWD
Cécile Denis, director of research at INSERM, shared a post on LinkedIn: ''The result of…
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Sep 7, 2025, 14:09 | Organizations
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared a…
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
Sep 7, 2025, 14:06 | Organizations
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
World Federation of Hemophilia shared a post on LinkedIn: “Thanks for joining our poll yesterday!…
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
Sep 7, 2025, 14:03 | Organizations
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
  The World Federation of Hemophilia (WFH) posted on X: ''The global Bleeding Disorders community…
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
Sep 5, 2025, 10:59 | Insight
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
  Rare Disease Advisor posted on LinkedIn: ''Regardless of treatment regimen or disease severity, patients…
EHC This Way Webinar: Enhancing Joint Health Through Exercise - 8 Sept
Sep 5, 2025, 10:55 | Voices
EHC This Way Webinar: Enhancing Joint Health Through Exercise - 8 Sept
   The European Haemophilia Consortium posted on X: ''Join our This Way Webinar on "Enhancing…
Living with Factor V Deficiency: Helen’s Inspiring Story on Haemnet Haemcast
Sep 3, 2025, 14:18 | Voices
Living with Factor V Deficiency: Helen’s Inspiring Story on Haemnet Haemcast
  Haemnet posted on X: ''As a dance teacher, Helen is fit and physically active…
Improving Bleeding Disorder Care: WFH Conducts Workshops in Gabon
Aug 27, 2025, 17:17 | Insight
Improving Bleeding Disorder Care: WFH Conducts Workshops in Gabon
World Federation of Hemophilia (WFH) shared a post on X: “The WFH recently visited Gabon…
Rare Disease Advisor – RBC Rheology Alterations in Hemophilia with Arthropathy
Aug 26, 2025, 09:59 | Insight
Rare Disease Advisor – RBC Rheology Alterations in Hemophilia with Arthropathy
Rare Disease Advisor shared a post on X: ”Impairments in Red Blood Cell (RBC) rheology, particularly…
HFA Supports Future Planning for People with Bleeding Disorders
Aug 26, 2025, 09:57 | Insight
HFA Supports Future Planning for People with Bleeding Disorders
Hemophilia Federation of America (HFA) shared a reminder post on X: ”Life with a bleeding…
Did You Know? von Willebrand Disease Awareness
Aug 22, 2025, 14:31 | Insight
Did You Know? von Willebrand Disease Awareness
Hemophilia Federation of America (HFA) shared a post on X: “Did you know? von Willebrand's…
RPTH Journal — Yara Dixon On Heavy Menstrual Bleeding and Effective Therapies
Aug 21, 2025, 15:57 | Drugs
RPTH Journal — Yara Dixon On Heavy Menstrual Bleeding and Effective Therapies
RPTH Journal shared a post on LinkedIn: “Heavy menstrual bleeding (HMB) is common and affects…
Join the 14th World Federation of Hemophilia Global Forum in Montreal
Aug 19, 2025, 14:05 | Insight
Join the 14th World Federation of Hemophilia Global Forum in Montreal
World Federation of Hemophilia (WFH) shared a post on Linkedin: “Registration is now open for…
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
Aug 5, 2025, 00:27 | Insight
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
The Irish Haemophilia Society shared a post on X: “Taking place in the Grand Hotel…
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Aug 2, 2025, 19:15 | Insight
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently posted…
WFH Shares Yannick Collé’s Story: A Woman’s Decades-Long Fight for a Bleeding Disorder Diagnosis
Jul 24, 2025, 05:40 | Organizations
WFH Shares Yannick Collé’s Story: A Woman’s Decades-Long Fight for a Bleeding Disorder Diagnosis
The World Federation of Hemophilia (WFH) shared an encouraging post on X: “No one thought…
Haemnet Gives Voice to Parents Facing the Challenges of Childhood Bleeding Disorders
Jul 23, 2025, 11:05 | Voices
Haemnet Gives Voice to Parents Facing the Challenges of Childhood Bleeding Disorders
Haemnet posted on X: ''Scary, stressful, traumatic… Taking control! Parents in our family-focused Haemnet blog…
EAHAD Launches Europe-Wide Survey on Haemophilia Gene Therapy Readiness
Jul 22, 2025, 17:05 | Insight
EAHAD Launches Europe-Wide Survey on Haemophilia Gene Therapy Readiness
European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: ''Gene therapy is transforming…
HTRS Shines Spotlight on Faculty Powering the Future of Hemostasis and Thrombosis
Jul 18, 2025, 11:53 | Insight
HTRS Shines Spotlight on Faculty Powering the Future of Hemostasis and Thrombosis
HTRS posted on X: ''A special thank you to our faculty, whose dedication helps make…
HTRS Thanks CSL Behring for Its Ongoing Commitment to Research Support
Jul 10, 2025, 11:23 | Insight
HTRS Thanks CSL Behring for Its Ongoing Commitment to Research Support
Hemostasis and Thrombosis Research Society (HTRS), has shared a post on X: “A huge thanks…
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
Jul 5, 2025, 16:33 | Organizations
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
The World Federation of Hemophilia (WFH) shared on X: “The WBDR provides a web-based data…
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