Stephanie Diez de Sollano: Why Ehlers-Danlos Syndrome Deserves More Attention
Stephanie Diez de Sollano, Health Care Professional at Stanford Health Care, shared a post on LinkedIn.
Ehlers-Danlos Syndrome (EDS) is a group of rare, inherited connective tissue disorders that affect the body’s ability to produce collagen, leading to hypermobility, skin fragility, and a range of debilitating symptoms.
This condition, often undiagnosed or misdiagnosed, significantly impacts the lives of those affected.
Individuals with EDS experience joint hypermobility, chronic pain, skin that bruises easily, fatigue, and in severe cases, life-threatening complications.
The spectrum of EDS subtypes includes classical, hypermobile, vascular, and others, each with distinct features and severity.
The challenges of EDS extend beyond the physical.
Mental health struggles, including anxiety and depression, often accompany the chronic pain and uncertainty of the condition.
The lack of awareness and understanding in society further complicates the daily lives of those with EDS, as the condition is often misunderstood or overlooked.”
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