Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Sara García Barcenilla, Nurse in the Thrombosis and Hemostasis Unit, La Paz-IdiPAZ University Hospital, shared an insightful post on LinkedIn:
”I am very very excited about the recent publication of our first approach to defining the competencies and optimal curriculum for hemophilia nurses in Spain!
We have worked with several nurses across the country and have reached consensus on the knowledge and skills nurses need at basic, advanced, and expert levels, our role in treatment management, monitoring patient-reported outcomes, and the importance of education and communication with patients, families, and colleagues.
This proposed three-tiered stratification could help define programs, accreditations, and policies, promoting consistent, high-quality care for people with hemophilia and congenital bleeding disorders.
Many thanks to the participating nurses and to the methodological support from Roche and Evidence.
This is my first article as lead author, and their experience and guidance have been key to my understanding of the process of preparing and disseminating our results.”
Read the full open-access article here.
Article: Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion
Authors: Sara García-Barcenilla, Montserrat Rambla Pérez, Noelia Pérez, Alfonso Castro Blanco, Anna Diaz, Carmen Fernandez Sarmiento, Eva Álvarez Martínez, María Dolores de Dios, María del Carmen García Martínez, María Teresa Torres, Mercè Triquell Garrell, Nuria Caballero Mencía, María Antonia Fernández
Stay updated on all science in the field of Hemophilia and Bleeding Disorders with Hemostasis Today.
-
May 31, 2026, 02:42Katja van den Hurk: Optimizing Iron Management in Blood Donors
-
May 31, 2026, 02:36The New JPAC Website Has Been Live for Nearly a Week – SHOT
-
May 31, 2026, 02:33Jecko Thachil: Is It Possible to Use Machine Learning for Differentiating Inherited Thrombocytopenia from Other Causes?
-
May 30, 2026, 18:12Khokon Miah Akanda: FDA Approves a First-in-Class Hypertension Drug
-
May 30, 2026, 18:11Alessandro Perrella: It is Not Only about “How High the CRP is”, but “in Which Patient” We are Measuring That Value
-
May 30, 2026, 18:11Jasper van Grunsven: Grateful for Our Rare Disease Team and the Commitment That Drives Our Mission
-
May 30, 2026, 18:10Open Registration for the 2026 Thrombosis Canada Annual Education Conference – Thrombosis Canada
-
May 30, 2026, 18:09Peter Zdziarski: Approval Does Not Mean NovoSeven is 100% Effective or Risk-Free in GT
-
May 30, 2026, 17:07Deepak Yadav: A Privilege to Talk on ESUS at CREST Stroke Conclave 2026