Kathaleen Schnur: Celebrating The Bleeding Disorders Community
Kathaleen Schnur, Licensed Clinical Social Worker at Hemophilia Center of Western Pennsylvania, shared a post on LinkedIn:
“There are few experiences quite like National Bleeding Disorders Foundation Annual Bleeding Disorder Conference where providers, chapters, consumers, industry, and the broader bleeding disorders community converge for a few days of education, connection, celebration, and most importantly a shared purpose.
This year was in Orlando. I sat with my national network of social workers for interactive, thoughtful conversations and education around topics that are both current and deeply relevant to the people we serve.
I was honored to join an incredibly brilliant and diverse panel of colleagues from across the country (and Canada) to normalize and openly discuss intimacy and sex—conversations that matter, and that our community deserves to have.
And then, the awards ceremony. Probably my favorite part. I had the privilege of presenting the provider awards and witnessing such incredible examples of what it means to profoundly impact patients and communities, both locally and globally.
I felt especially proud knowing both the Physician of the Year, Nathan Connell, MD, MPH and Social Worker of the Year, Anita Graham. I have witnessed their passion, investment, and the humanity they bring to this work.
There is something especially beautiful about seeing people receive recognition for work they seem to view as an extension of who they are and what they believe in.
My local Western Pennsylvania Bleeding Disorder Foundation was recognized for its exceptional teen programming. I also had the joy of watching the recognition of young, emerging trailblazers who are already effecting change before their careers have even fully begun (I see you Paxton Mills).
There was also the profound experience of witnessing the posthumous recognition of Lynn Malec for her research contributions to a community she cared so deeply about. And then a lifetime achievement award to Mark Skinner and his moving speech that held beauty, pain, celebration, and gratitude all at once.
My heart is full. Full from witnessing. Full from presenting. Full from sitting alongside brilliance, passion, commitment, and so many genuinely gorgeous humans who continue to make this community what it is.”
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