Ahmed Bahi: Improving Hemophilia and Rare Disease Care in the Middle East
Ahmed Bahi, Critical Care Pharmacist Specialist in Trauma Services at Hamad Medical Corporation, shared a post on LinkedIn about a recent article he and his colleagues co-authored, published in Orphanet Journal of Rare Diseases, adding:
”Excited to share our recent publication: ‘Management of Patients with hemophilia and Rare Diseases in the Middle East: Challenges and Opportunities – Insights from the Rare Advocacy Council’
In this study, published in Orphanet Journal of Rare Diseases, we dive deep into the unique landscape of hemophilia as a rare disease management in the Middle East. We highlight the significant challenges faced by patients, healthcare providers, and policymakers, while also uncovering valuable opportunities for improvement.
Key insights include:
- Healthcare Access: Addressing disparities in treatment availability and accessibility.
- Advocacy Efforts: The crucial role of advocacy councils in shaping policies and raising awareness.
- Collaboration: The importance of partnerships among healthcare professionals, researchers, and patient organizations to foster innovation and improve outcomes.
Our findings stress the need for tailored strategies to enhance care for rare disease patients in this region. I invite you all to read the full article and join the conversation on how we can work together to make a difference!”
Title: Management of patients with rare diseases in the Middle East: challenges and opportunities-insights from the Rare Advocacy Council
Authors: Agnes Farrugia, Ahmed Bahey, Ahmad Tarawah, Arwa Al Yamani, Carla Abou Selwan, Dania Mohty, Denis Wolfs, Dorica Dan, Hafiz Mosa Ali Malhan, Johan De Graaf, Stefan Zivkovic, Yasser Wali, Youmna Ouraybi, Zakareya Al Kadhem, Nafisa Tawfiq, Lee Davelaar, Noha Mohamed Mahmoud Abdelbaky
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