EHC_Haemophilia/X
Sep 1, 2025, 07:42
EHC Highlights EURORDIS Rare Barometer Survey Launch Webinar on Rare Diseases – Sept 11
The European Haemophilia Consortium posted on X:
”Join EURORDIS Rare Barometer Survey Launch Webinar: 11 Sept 2:30 PM CEST. Learn about the survey on what helps people with Rare Diseases thrive + get a 25-language toolkit to share. Open to all.
Register here.”
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