Sara Al Dallal: Transforming Hemophilia Care Across the Gulf
Sara Al Dallal, President of Emirates Health Economics Society at Emirates Medical Association, shared a post on LinkedIn about a recent article she and her colleagues co-authored, published in Blood Global Hematology, adding:
“Hemophilia care in the Gulf.
I’m pleased to share our new paper in Blood Global Hematology, ‘Transforming hemophilia care in the Gulf region: a patient journey and policy framework.’
Some numbers behind the case for action:
- Only approximatelly 42% of people with hemophilia are estimated to be diagnosed across the Eastern Mediterranean region.
- Reported prevalence ranges from 1.06 to 7.54 per 100,000 across the Gulf, largely reflecting differences in registration and diagnostics, not true disease burden.
- Estimated costs of hemophilia A in the MENA region reach up to $870,000 per patient per year.
Our multistakeholder panel of hematologists, policymakers and patient advocates mapped the journey from diagnosis to long-term care.
Our priorities for health systems:
- Hub-and-spoke centers of excellence. Saudi Arabia’s regional network led to a threefold increase in bleeding disorder detection.
- National registries to support forecasting, procurement and real-world evidence.
- Unified national and regional guidelines to reduce variability without heavy manpower demands.
- Real-world outcomes linked to reimbursement. Coordinated data could strengthen collective negotiating power, but it requires investment in interoperable digital infrastructure.
- Gulf-specific health economic evidence (budget impact, cost-utility, resource use).
As a health economist, I believe policy change happens when solutions are practical, quantifiable and easy to act on.”
Title: Transforming hemophilia care in the Gulf region: a patient journey and policy framework
Authors: Muhammad Faisal Khanani, Ahmed Abdelbari, Mohammad Fahed Abdullah, Sara Al Dallal, Shahrukh Hashmi, Ali Mullah-Ali, Tarek Owaidah, Nisrine Sabra, Dalal Badis, Nadia Steitieh, Johnny Mahlangu

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