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Priyadarshani Sharma: Advocacy and Patient Rights Transform Indian Haemoglobinopathies Care

Priyadarshani Sharma/LinkedIn

Sep 29, 2026, 15:43

Priyadarshani Sharma: Advocacy and Patient Rights Transform Indian Haemoglobinopathies Care

Priyadarshani Sharma, Vice President Communications and Head of Communications at Roche, shared Avian We‘s post on LinkedIn:

“A great example of what true advocacy looks like, the balance of civic responsibility, and how lived experiences can shape national policy.”

Avian We shared a post on LinkedIn:

“Every hour, a child in India is born with Thalassemia Major.

India has the highest number of children living with the condition anywhere in the world. For many of them, regular blood transfusions are a lifelong necessity.
That makes access to safe blood, and the need for voluntary blood donation, a conversation that affects thousands of families every day.

On hashtag#WorldPatientSafetyDay, we’re reviving Pulse Talks, Avian We.’s podcast series spotlighting conversations that shape the future of healthcare. For Season 2, we’re sitting down with women who have helped move these conversations forward.

Opening the season is Anubha Mukherjee, Member Secretary, Thalassemia Patients Advocacy Group (TPAG), in conversation with Sharmistha Ghosh Solomon, Senior Vice President, Social Impact and Healthcare.

Among the key takeaways from their conversation:

Rights come with duties.
Safe blood is a right, not a favour.
Voluntary blood donation can make a life-saving difference.

Watch the first episode of Pulse Talk- Season 2 for a powerful conversation on patient rights, safer blood and the responsibility we all share in strengthening healthcare.”