Photo:
m4rd.org
Apr 13, 2026, 13:02
CAN-ACT Reaches 200 Patients in Six Months – Loeys-Dietz Syndrome Foundation Canada
Loeys-Dietz Syndrome Foundation Canada shared a post on LinkedIn:
“Milestone achieved: 200 patients enrolled in just six months!!
This important achievement reflects the growing momentum of the Canadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT), a national initiative advancing research on heritable syndromic aortopathies across Canada.
By integrating clinical, genetic, and quality-of-life data, CAN-ACT is helping drive earlier diagnosis, improved care, and stronger advocacy for these rare conditions.”
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