Michelle Leona Cecil: Honoring the Past While Advancing the Future of Care on World Hemophilia Day
Michelle Leona Cecil, Community Digital Advocate at MicroHealth, WFH Susan Skinner Memorial Fund Scholarship Advisory and Selection Committee Member, shared on LinkedIn:
”Today, on World Hemophilia Day, I find myself holding both reflection and gratitude.
This community has a history that cannot, and should not, be forgotten.
We stand on the shoulders of those who came before us, including the lives lost during the bad blood crisis, a time when treatment meant risk, and trust in the system was met with devastating consequences.
Their stories shaped the advocacy, safety standards, and urgency that define our work today.
Because of them, because of relentless advocacy from this community, we are living in a very different era.
One filled with innovation, safer therapies, and possibilities that once felt out of reach.
And yet, progress doesn’t mean we’re done.
We still see gaps, in diagnosis, in access, in understanding lived experiences. We still hear stories of people not feeling seen or believed.
That’s why this day matters. It’s not just about awareness, its about honoring where we’ve been and continuing to push forward.
In my work at Microhealth (digital hematology), I’m reminded daily how far we’ve come, and how powerful our voices are when backed by real data.
Microhealth is a free, patient-centered digital hematology tool that helps turn lived experience into something actionable.
Logs, patterns, and daily tracking don’t just support individual care, they strengthen advocacy, research, and the future of treatment.
It’s one more way we ensure that the experiences of this community are not lost, overlooked, or dismissed, but instead, used to drive better care and better outcomes.
Today, I’m remembering those we’ve lost.
I’m grateful for the progress we’ve made.
And I’m committed, alongside so many of you, continuing the work.
Because this community has always been stronger together.”
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