EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
The European Haemophilia Consortium (EHC) shared an encouraging post on X:
”Help shape the future of care for people with Extremely Rare bleeding disorders and BDUC across Europe! The EHC Survey is open—share your experience so no voice is left behind!”
To take the survey, follow the link.
The European Haemophilia Consortium is collecting insights from the community to help The Community! Bleeding Disorders take the spotlight.
EHC has launched a pan-European survey to better understand the needs of individuals living with extremely rare bleeding disorders (ERBDs) and bleeding disorders of unknown cause (BDUC).
Aimed at gathering direct input from patients across National Member Organisations (NMOs), the survey seeks to ensure that no voice is left unheard.
Insights will inform future advocacy, care strategies, and research priorities—help shape the future of care by sharing your experience today.
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