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5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
The European Haemophilia Consortium / X
Jul 1, 2025, 18:13

5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community

The European Haemophilia Consortium recently shared a post on X:

”We had a meaningful day advocating for patients with bleeding disorders at the 5th HTA Stakeholder Meeting:
– Patients must be co-creators, not bystanders;
– Training is key–patient experts need the right tools;
– Metrics matter–patients should have a voice in what’s measured.”

At the 5th Health Technology Assessment-HTA Stakeholder Meeting, EHC made one thing clear: patients are not passive participants—they are partners in progress.

Here is what the day reinforced:

  • HTA can’t afford to be a closed-door process. People living with bleeding disorders must be involved from the start—not as an afterthought, but as co-authors of the system that evaluates their care.
  • What gets measured gets valued. Patients deserve a voice in defining what outcomes truly matter, beyond charts and cost curves.

Overall, this meeting was a reminder that HTA isn’t just about cost-effectiveness. It’s about people.

More on the news of bleeding disorders in Hemostasis Today.

bleeding disorders Bleeding Disorders Community Health Health Technology Assessment Hematology Hemostasis Today HTA Stakeholders Meeting Medicine The European Haemophilia Consortium (EHC)
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