The European Haemophilia Consortium / X
Jul 1, 2025, 18:13
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
The European Haemophilia Consortium recently shared a post on X:
”We had a meaningful day advocating for patients with bleeding disorders at the 5th HTA Stakeholder Meeting:
– Patients must be co-creators, not bystanders;
– Training is key–patient experts need the right tools;
– Metrics matter–patients should have a voice in what’s measured.”
At the 5th Health Technology Assessment-HTA Stakeholder Meeting, EHC made one thing clear: patients are not passive participants—they are partners in progress.
Here is what the day reinforced:
- HTA can’t afford to be a closed-door process. People living with bleeding disorders must be involved from the start—not as an afterthought, but as co-authors of the system that evaluates their care.
- What gets measured gets valued. Patients deserve a voice in defining what outcomes truly matter, beyond charts and cost curves.
Overall, this meeting was a reminder that HTA isn’t just about cost-effectiveness. It’s about people.
More on the news of bleeding disorders in Hemostasis Today.
-
Jul 5, 2026, 22:51Shahzaib Akram: What Are We Actually Seeing When a Sickling Test Goes Positive?
-
Jul 5, 2026, 21:474 Tips for Exercising with A Bleeding Disorder – Haemophilia Foundation Australia
-
Jul 5, 2026, 21:06Heghine Khachatryan: Toward Personalized Management of Glanzmann Thrombasthenia
-
Jul 5, 2026, 21:06Priyanka Kumari: IV Fluids and Isotonic Solution
-
Jul 5, 2026, 21:05Ahmed Rizq: Would You Thrombolyse a Stable Patient?
-
Jul 5, 2026, 21:03Emmanuel Obeng Ofori: Diagnosing Anaemia – Why Treating the Root Cause Matters More Than Simply Raising the Haemoglobin
-
Jul 5, 2026, 21:02Mohit Koladia: The Pharmacist’s Role in Stroke Prevention for Atrial Fibrillation
-
Jul 5, 2026, 20:22J. Meireles-Brandao: Exploring the Approach to Thrombophillias
-
Jul 5, 2026, 20:13Kavya Keerthana: The Platelet Count Everyone Calls ‘Reactive’ Until It Isn’t