Daria Camilli on EuroBloodNet and EHC Collaboration for Bleeding Disorders
Daria Camilli, Education and Communication Manager at EHC – European Haemophilia Consortium, reposted from ERN-EuroBloodNet on LinkedIn:
”A heartfelt thank you to the colleagues at ERN–EuroBloodNet (European Reference Network on Rare Hematological Diseases) for partnering with us on this project.
Together, we are joining forces to engage outstanding clinicians in meaningful conversations about key aspects of ageing with a bleeding disorder.
We look forward to kicking off in January, when we will be speaking with Susie Shapiro and William McKeown about frailty.
Mark your calendars!”
Quoting ERN-EuroBloodNet‘s post:
”New educational program for patients and their families!
ERN-EuroBloodNet, in collaboration with the EHC – European Haemophilia Consortium, is launching a new webinar series dedicated to patients with bleeding disorders and their families.
The four webinars address the challenges of ageing with bleeding disorders through expert-led sessions.
Topics include redefining frailty, understanding how ageing affects bleeding, and managing cardiovascular and other comorbidities.
The program brings together clinicians, researchers, and patient advocates to encourage shared learning and knowledge exchange across Europe.
Start date: 22/01/2026
Registration for the full program is now open!
Find out more and register here.”
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