Shauna Riley։ First Guidelines for Hemoglobin SC Disease
Shauna Riley, Executive Director at The Riley Foundation for Sickle Cell Disease, shared a post on LinkedIn about a recent article by Cecelia Calhoun et al., published in Journal of Sickle Cell Disease, adding:
”Happy Monday!
First national Guidelines for hemoglobin SC established by the European Hematology Association.
First dedicated clinical guidelines for hemoglobin SC disease
Evidence: The European Hematology Association published the first guidelines specifically addressing children and adults with hemoglobin SC disease on October 6, 2026.
Developed with patient representatives, the document contains 35 recommendations, including guidance on hydroxyurea and therapeutic venesection.
It emphasizes that HbSC is clinically distinct from HbSS and should not automatically be treated as a benign or ‘mild’ condition.”
Title: A collaborative, patient-centered initiative to implement safe and effective transitions of care in SCD
Authors: Cecelia Calhoun, Nirmish Shah, Akshat Jain, Alexandra Walsh, Abdul Hafeez Siddiqui, Emily Zyborowicz, Jeffrey Carter, Cherilyn Heggen, Lindsay Gurska, Shelby Sullivan
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