Heghine Khachatryan: A Century of Progress – Yet a Call for Action in von Willebrand Disease
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology and Oncology Center, shared World Federation of Hemophilia‘s post on LinkedIn:
“Century of Progress – Yet a Call for Action
It is both inspiring and deeply meaningful to witness that in 2026 we mark 100 years since the discovery of von Willebrand disease (VWD) -the most common inherited bleeding disorder.
However, beyond this historical milestone lies a critical reality:
- VWD remains underdiagnosed worldwide
- Women and girls continue to be disproportionately affected and overlooked
- Laboratory variability and limited access still challenge accurate diagnosis
At the upcoming WFH World Congress 2026, the global hematology community will come together to address these gaps – from diagnostic standardization and genomic insights to future therapeutic strategies and equitable access.
As a hematologist working in a developing healthcare system, I see this not only as scientific progress – but as a global responsibility.
For countries like ours, this discussion is not theoretical.
It is about:
- Recognizing bleeding symptoms early
- Strengthening laboratory infrastructure
- Improving awareness among clinicians
- Ensuring that no patient remains undiagnosed or misdiagnosed
This is the moment to move:
from awareness to accountability to action
Let us use this centennial milestone not only to reflect – but to accelerate progress globally, especially for those still invisible within our healthcare systems.”
World Federation of Hemophilia shared a post on LinkedIn:
“A century of progress in von Willebrand disease.
In 2026, we mark the 100-year milestone since the discovery of VWD, the most common inherited Bleeding Disorder.
At the WFH 2026 World Congress, experts will explore its history, advances in diagnosis, emerging and future treatments, and ongoing challenges in identifying the condition, especially in women and girls.
Proceed to the video attached to the post.
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