Heghine Khachatryan: A Meaningful Step Forward for Inherited Blood Disorders in Africa
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology and Oncology Center, shared Novo Nordisk Haemophilia and Haemoglobinopathies Foundation‘s post on LinkedIn:
“A meaningful step forward for inherited blood disorders in Africa
It is encouraging to see the growing continental commitment to improving the diagnosis, treatment, and long-term care of people living with sickle cell disease, haemophilia, and other inherited blood disorders.
The recent meeting in Dar es Salaam, bringing together key stakeholders through collaboration involving the Novo Nordisk Haemophilia and Haemoglobinopathies Foundation (NNHF) and African partners, highlights an essential principle: sustainable progress requires more than access to treatment.
It requires strong national programmes, reliable diagnostics, trained multidisciplinary teams, patient registries, education, and equitable access to comprehensive care.
For countries working to strengthen services for rare and inherited blood disorders, initiatives such as this demonstrate the importance of moving from individual projects toward coordinated health-system strategies and regional collaboration.
Congratulations to all colleagues and organizations contributing to this important work. Every step toward earlier diagnosis and equitable care can translate into fewer preventable complications and better quality of life for patients and their families.”
Novo Nordisk Haemophilia and Haemoglobinopathies Foundation shared a post on LinkedIn:
“A significant step forward for inherited blood disorders in Africa
Last week in Dar es Salaam, the Novo Nordisk Haemophilia and Haemoglobinopathies Foundation (NNHF) and Africa CDC, co-funded with the Novo Nordisk Foundation officially launched a new partnership to support the implementation of the Continental Plan for Sickle Cell Disease and Other Inherited Blood Disorders.
The kick-off meeting brought together representatives from Africa CDC, Ministries of Health, NNHF Council Members Prof Saliou Diop and Dr Kibet Shikuku, healthcare experts, and advocates from the haemophilia and sickle cell disease communities.
Powerful testimonies from community representatives Dominic Seye and Shoma Kumalija highlighted the profound health, economic, and social challenges faced by people living with these conditions across the continent.
The first milestone of this partnership is the publication and dissemination of the Continental Plan, endorsed by all African Union Member States, which provides a roadmap for improving prevention, diagnosis, treatment, and care. Through this collaboration, NNHF will support implementation efforts in 10 countries across Africa.
Stay tuned. We look forward to sharing the full Continental Plan once it is officially published and continuing this journey from commitment to action together.”
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