Megan Adediran/ LinkedIn
Mar 3, 2026, 08:48
Megan Adediran: Redefining Rare Diseases in Nigeria’s Healthcare System
Megan Adediran, Executive Director of the Haemophilia Foundation of Nigeria, shared a post on LinkedIn:
“How Rare Is Rare?
A disease is called rare when it affects a small number of people. But there are over 7,000 rare diseases.
Together, they affect more than 300 million people worldwide.
That is not rare. That is a movement.
In Nigeria, rare often means:
- Late diagnosis.
- Limited treatment.
- High costs.
- Silent suffering.
For people living with haemophilia and other rare conditions, awareness can mean the difference between disability and dignity.
Rare is not invisible. Rare is not insignificant. Rare is someone’s child. Rare should never mean forgotten.”
Stay updated with Hemostasis Today.
-
Apr 20, 2026, 08:17Heghine Khachatryan: Key Takeaways from Day 1 – WFH 2026 World Congress
-
Apr 20, 2026, 08:10Justin Nelson-Deering։ Celebrating World Hemophilia Day in Pediatric Care
-
Apr 20, 2026, 07:53Maha Othman: Students Bringing Biomedical Chemistry to Life Through a Mini Symposium
-
Apr 20, 2026, 07:41Augustina Isioma Ikusemoro: The Role of Humanitarian Foundations in Strengthening Blood Supply
-
Apr 20, 2026, 07:14David Calvet Canut։ Efdoralprin Alfa Shows Promise in Alpha 1 Antitrypsin Deficiency
-
Apr 20, 2026, 05:38Doreen Su-Yin Tan։ Moving Toward Precision in Antiplatelet Therapy 2026 SCSASM2026 Highlights
-
Apr 20, 2026, 05:36Emma Groarke: Evidence-Based Guidelines for the Management of Acquired Aplastic Anemia
-
Apr 20, 2026, 04:27Tareq Abadl: Can Vitamin C Trick a Glucose Reading?
-
Apr 20, 2026, 04:24Tagreed Alkaltham: Motivational Drivers of Voluntary Blood Donation