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Expanding Haemophilia Detection and Access in Sierra Leone – NNHF
NNHF/LinkedIn
Apr 19, 2026, 07:38

Expanding Haemophilia Detection and Access in Sierra Leone – NNHF

Novo Nordisk Haemophilia and Haemoglobinopathies Foundation shared a post on LinkedIn:

“Impact Spotlight: April

Welcome to the latest spotlight on World Haemophilia Day: We are proud to share a story that speaks directly to this year’s global theme: diagnosis.

Meet Mohamed Bangura

Pictured is Harry Mayeah Koroma, President of Frontiers for Haemophilia and Bleeding Disorders Sierra Leone (left), during a visit in 2024 to young Mohamed, the first haemophilia case ever diagnosed in Sierra Leone, alongside his mother and siblings.

A moment that represents much more than one diagnosis.

What’s changing on the ground?

Since the first NNHF project, the total number of diagnosed haemophilia cases has risen from 32 to 47, a 43% increase in diagnosis rates.

Behind these numbers are tangible actions:

  • A core team of champion nurses trained in family tree tracing to identify suspected cases
  • A dedicated laboratory technician with expertise in haemophilia diagnosis
  • A trained physician providing basic haemophilia care
  • Advocacy efforts ensuring the regular availability of diagnostic reagents at Connaught Hospital, made possible with the support of the Mayor of Freetown

Why is this working?

At the heart of this progress is a strengthened patient organisation and a committed team of volunteers driving change from within.

Outreach workshops across Makeni, Kono and Freetown have raised awareness of haemophilia among healthcare professionals and the wider public, fostering earlier identification and a broader understanding of the condition.

Looking ahead

The current project aims to establish multidisciplinary care in the capital and initiate basic and emergency care across three regions, potentially reducing travel time by up to 6 hours for people with haemophilia living outside the city.

Today, we celebrate every diagnosis, every dedicated volunteer and every step forward.

The journey of ‘Impacting care.

Together’ continues.”

Denise Braendgaard, General Manager at Novo Nordisk Haemophilia and Haemoglobinopathies Foundation, shared this post on LinkedIn, adding:

“We are joining today’s World Haemophilia Day celebration and thank wholeheartedly our partners across the world for their exemplary and exceptional dedication every day.”

Stay updated with Hemostasis Today.

 

 

 

Denise Braendgaard haemophilia Harry Mayeah Koroma Headlines Health Hematology Hemostasis Hemostasis News Hemostasis Today Medicine Novo Nordisk Haemophilia and Haemoglobinopathies Foundation World Haemophilia Day
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