Lisa Shea Shares Key Takeaways from NORD Summit 2025
Lisa Shea, Director, Global Patient Advocacy and Engagement at Johnson & Johnson, shared on LinkedIn:
”In-person connections with advocacy leaders and partners bring stories to life, spark collaboration, and deepen our understanding of patient priorities—so our work reflects patient needs.
I just returned from this year’s NORD Summit, where the theme, “From Voices to Breakthroughs,” truly resonated with me—especially given my role in advocacy to elevate the patient voice and ensure it informs drug development and healthcare decisions.
Key Session Takeaways:
- Integrate Mental Health: Mental health is physical health; essential to outcomes and helps reduce isolation for patients and caregivers.
- Demonstrate Value for Access: Accelerated approvals need meaningful payer endpoints, proactive payer engagement, and robust patient support.
- Make Science Personal: Authentic storytelling and empathetic leadership foster trust and compassion. Embedding patient stories throughout product launch can make a lasting impact.
I was thrilled to present two abstracts that captured qualitative research on the lived experiences of HDFN and FNAIT pregnancies, highlighting fear, uncertainty and the burden of self-advocacy for individuals faced with alloimmune disease in pregnancy.
My colleague, Zia Choudhry, MD, PhD, MCS, MBA presented on patient-partnered research to shape educational resources in wAIHA.
We were joined by strong advocacy partners – Maternal Alloimmunization Foundation and wAIHA Warriors – grateful to these communities who continue to support and inspire others.”
Stay updated with Hemostasis Today.
-
Feb 26, 2026, 12:05Anirban Sen Gupta: PlateChek Links Platelet Status to Hemostasis Outcomes in Whole Blood
-
Feb 25, 2026, 16:47Alan Nurden: Platelet Defects Explain Bleeding in EHDS Patients
-
Feb 25, 2026, 16:40Mohammed Almohammadi: Uniting Leaders in Laboratory Hematology at the 1st Saudi ISLH Joint Conference
-
Feb 25, 2026, 16:37Salihu Asimawu: Inflammation Is Not a Disease – Hats Off to the Heroes Inside Us
-
Feb 25, 2026, 16:34Michael Makris: Biomarin Has Decided to Withdraw Roctavian from the Market
-
Feb 25, 2026, 16:25Tagreed Alkaltham: The Blood Banker Personality
-
Feb 25, 2026, 16:17Sanjay Ahuja: Insightful Talk on 100 Years of VWD by Jorge Di Paola
-
Feb 25, 2026, 15:20Michael Shapiro։ Creating Real Pathways for Trainees in Preventive Cardiology
-
Feb 25, 2026, 15:15Ajay Kumar: Plasma Component Quality Control Standards