Lisa Shea Shares Key Takeaways from NORD Summit 2025
Lisa Shea, Director, Global Patient Advocacy and Engagement at Johnson & Johnson, shared on LinkedIn:
”In-person connections with advocacy leaders and partners bring stories to life, spark collaboration, and deepen our understanding of patient priorities—so our work reflects patient needs.
I just returned from this year’s NORD Summit, where the theme, “From Voices to Breakthroughs,” truly resonated with me—especially given my role in advocacy to elevate the patient voice and ensure it informs drug development and healthcare decisions.
Key Session Takeaways:
- Integrate Mental Health: Mental health is physical health; essential to outcomes and helps reduce isolation for patients and caregivers.
- Demonstrate Value for Access: Accelerated approvals need meaningful payer endpoints, proactive payer engagement, and robust patient support.
- Make Science Personal: Authentic storytelling and empathetic leadership foster trust and compassion. Embedding patient stories throughout product launch can make a lasting impact.
I was thrilled to present two abstracts that captured qualitative research on the lived experiences of HDFN and FNAIT pregnancies, highlighting fear, uncertainty and the burden of self-advocacy for individuals faced with alloimmune disease in pregnancy.
My colleague, Zia Choudhry, MD, PhD, MCS, MBA presented on patient-partnered research to shape educational resources in wAIHA.
We were joined by strong advocacy partners – Maternal Alloimmunization Foundation and wAIHA Warriors – grateful to these communities who continue to support and inspire others.”
Stay updated with Hemostasis Today.
-
Oct 10, 2026, 10:07Maha Othman: Look Forward to an Amazing ISTH 2027 in Vancouver!
-
Oct 10, 2026, 10:02Rucha Patil: National Convening Highlights Opportunities for Equitable Hemophilia Care Across India
-
Oct 10, 2026, 09:52Yuria Ito: Should Ferritin Testing Become a Routine Part of Prenatal Care in Japan?
-
Oct 10, 2026, 09:48Ahmed Alotaibi: Can We “Remove” the ABO Problem from Group O Platelets?
-
Oct 10, 2026, 09:31Help Shape the New ASH Iron Deficiency Guidelines – American Society of Hematology
-
Oct 10, 2026, 09:05Wolfgang Miesbach: Moving from Bleed Control to Comprehensive Joint Health
-
Oct 10, 2026, 07:59Leila Caroline Souza Reis: Enoxaparin Dosing for VTE Prevention in Adults With Obesity
-
Oct 10, 2026, 07:41Adeeb Bazuhair: New Evidence for Catheter Directed Thrombolysis in Acute PE
-
Oct 10, 2026, 07:22Poppy Clarke: Turning Steps Into Support for Thrombosis Awareness