Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska
National Organization for Rare Disorders (NORD) shared a proud announcement on X:
”Big win in Alaska! As part of the SAIM Coalition, NORD helped pass SB 133—a new law that removes step therapy barriers for Rare Disease patients. Alaska patients can now access the medications their doctors prescribe without navigating burdensome “fail first” requirements. One more state making care accessible.”
To learn more, follow the link.
Alaska celebrates a major victory for rare disease patients with the passing of SB 133, thanks to advocacy by the SAIM Coalition and NORD.
The new law removes step therapy barriers, ensuring patients can access prescribed treatments without burdensome “fail first” protocols—marking a key step toward more accessible care.
Latest news in the Rare Disorders Community featured in Hemostasis Today.
-
Oct 9, 2026, 10:40What New U.S. Data Reveal About GT – Glanzmann’s Research Foundation
-
Oct 9, 2026, 10:32Anjali Pandey: The Morphologic Clues to MDS With del(5q)
-
Oct 9, 2026, 10:13Reza Shojaei: 5 Leadership Responsibilities for a Sustainable Plasma Ecosystem
-
Oct 9, 2026, 08:38Johannes Gratz: Perioperative Care in Factor VII Deficiency – Treating the Patient, Not the Number
-
Oct 9, 2026, 08:28Ghanim Fajish: Vascular Cells May Retain a Prothrombotic Memory of Oxidative Stress
-
Oct 9, 2026, 07:43Mehmet Cilingiroglu: The First Diagnosis of Coronary Thrombosis in a Living Patient
-
Oct 9, 2026, 07:21Federico Ravaioli: 40 kPa Spleen Stiffness May Help Avoid Endoscopy in Chronic PVT
-
Oct 9, 2026, 07:00Danny Reardon: Closing the Global Awareness Gap on Blood Clots
-
Oct 9, 2026, 00:54Mary Catherine Moffett: Advancing Advocacy Together – Highlights from the Sanofi Bleeding Disorders Summit