Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska
National Organization for Rare Disorders (NORD) shared a proud announcement on X:
”Big win in Alaska! As part of the SAIM Coalition, NORD helped pass SB 133—a new law that removes step therapy barriers for Rare Disease patients. Alaska patients can now access the medications their doctors prescribe without navigating burdensome “fail first” requirements. One more state making care accessible.”
To learn more, follow the link.
Alaska celebrates a major victory for rare disease patients with the passing of SB 133, thanks to advocacy by the SAIM Coalition and NORD.
The new law removes step therapy barriers, ensuring patients can access prescribed treatments without burdensome “fail first” protocols—marking a key step toward more accessible care.

Latest news in the Rare Disorders Community featured in Hemostasis Today.
-
Aug 26, 2026, 14:03Ahmad Masri: The Amyloid Depleter Revolution in ATTR-CM
-
Aug 26, 2026, 13:59David McIntosh: Immunoglobulin Stewardship in the Face of Rising Demand
-
Aug 26, 2026, 13:54Giuseppe Biondi Zoccai: Congratulations to the Next Editor-in-Chief of the EHJ
-
Aug 26, 2026, 13:25Omar Adwan: Abnormal Nuclear Morphology of Neutrophil
-
Aug 26, 2026, 13:05Preventing Thrombosis with WTDay26
-
Aug 26, 2026, 10:09Gemma Figtree: How Well Do We Predict Heart Attack Risk in Women?
-
Aug 26, 2026, 10:06Understanding and Managing Fatigue in ITP – ITP Support Association
-
Aug 26, 2026, 10:04Abdul Muqtadir Abbasi: When a High INR Hides a Thrombotic Cancer
-
Aug 26, 2026, 09:42Mohammed Alo: What’s Wrong With the New Blood Pressure Guidelines?