Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska
National Organization for Rare Disorders (NORD) shared a proud announcement on X:
”Big win in Alaska! As part of the SAIM Coalition, NORD helped pass SB 133—a new law that removes step therapy barriers for Rare Disease patients. Alaska patients can now access the medications their doctors prescribe without navigating burdensome “fail first” requirements. One more state making care accessible.”
To learn more, follow the link.
Alaska celebrates a major victory for rare disease patients with the passing of SB 133, thanks to advocacy by the SAIM Coalition and NORD.
The new law removes step therapy barriers, ensuring patients can access prescribed treatments without burdensome “fail first” protocols—marking a key step toward more accessible care.

Latest news in the Rare Disorders Community featured in Hemostasis Today.
-
Mar 7, 2026, 16:24Kalpana Gupta Shekhawat: The Overlooked Regulator of Mast Cells – Understanding the Vagus Nerve
-
Mar 7, 2026, 16:20Purusotham Chippala: How DALYs Reveal the True Burden of Stroke
-
Mar 7, 2026, 16:13Ilenia Calcaterra: Patient-Level Real-World Outcomes of Emicizumab in Acquired Hemophilia A
-
Mar 7, 2026, 16:05Iyas Daghlas: DOACs Use, Genetic Reduction of Coagulation Factors and Risk of Cerebral Venous Thrombosis
-
Mar 7, 2026, 15:58Aurelio Maggio: The Mission and The Projects We Are Advancing for Rare Hematologic Diseases
-
Mar 7, 2026, 15:52Faizan Khan: The Importance of Cancer Site in Bleeding Risk Stratification for Cancer-Associated VTE
-
Mar 7, 2026, 15:50Heghine Khachatryan: How DOACs Can Cause False-Positive FVIII Inhibitor Results
-
Mar 7, 2026, 15:43Gevorg Tamamyan Joins The London Global Cancer Week Steering Group
-
Mar 7, 2026, 15:36Kenneth Monaghan: Empowering Stroke Survivors’ Self-Efficacy Through Neuroplasticity and Daily Activity