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Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska
National Organization for Rare Disorders / X
Jul 19, 2025, 18:31

Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska

National Organization for Rare Disorders (NORD) shared a proud announcement on X:

”Big win in Alaska! As part of the SAIM Coalition, NORD helped pass SB 133—a new law that removes step therapy barriers for Rare Disease patients. Alaska patients can now access the medications their doctors prescribe without navigating burdensome “fail first” requirements. One more state making care accessible.”

To learn more, follow the link.

Alaska celebrates a major victory for rare disease patients with the passing of SB 133, thanks to advocacy by the SAIM Coalition and NORD.

The new law removes step therapy barriers, ensuring patients can access prescribed treatments without burdensome “fail first” protocols—marking a key step toward more accessible care.

Big Win Thanks to NORD : 1 Single Law Removes Barriers for Rare Disease Patients in Alaska

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