Sarah-Jane Nkrumah: Giving a Wider Understanding to Those Living With Sickle Cell
Sarah-Jane Nkrumah, Founder of Sickle Cell Unite, posted on LinkedIn:
”One of our recent posts seemed to really resonate with many living with sickle cell, we’ve received many messages on these statements that make them feel. I liked to share them on my profile to give a wider understanding.
These are personal takes we have encountered over the years from those living with Sickle Cell. They may not apply to everybody, as everybody is different, but just a heads up, as it usually is a shared thought.
Over the years, we have heard these things from many warriors; it’s not that they don’t appreciate the support, it’s just that these phrases can come at the wrong times. There are also things that have been said over and over again and are not what people who are in pain may want to hear at that time. This is to help become more aware.
Save this for awareness.
Share so others can also understand.
Comment on something you may be tired of hearing. Repost if you can relate.”

Keep up with Hemostasis Today.
-
Jun 26, 2026, 18:28Daniel Pereira Monteiro: Why Is Beta Thalassaemia Major so Severe?
-
Jun 26, 2026, 18:27Pradip Pawar: Cell and Gene Therapy – Transforming Medicine in the 21st Century
-
Jun 26, 2026, 18:26Aviva Schwartz: How Can We Better Protect Patients After an Ischemic Stroke?
-
Jun 26, 2026, 18:25Does Reversing Factor Xa Inhibitors Really Carry as Much Thrombotic Risk as We Think? – RPTH Journal
-
Jun 26, 2026, 18:25Akshat Jain: Novel Therapies in Childhood Blood and Cancer Disorders
-
Jun 26, 2026, 16:57Abdul Muqtadir Abbasi: Anticoagulation in DVT Patients With Hidden Varices Requires Extreme Caution
-
Jun 26, 2026, 16:42Anesa Mulabecirovic: Why Von Willebrand Disease Takes Years to Diagnose in Women
-
Jun 26, 2026, 16:32Kaitlin Lichty: A New Identity Reflecting a Shared Legacy of Bleeding Disorders
-
Jun 26, 2026, 16:07Toong Youttananukorn: The WFH Registry Driving Better Care and Advocacy