Annette Logan-Parker: A Hemophilia B Breakthrough – From Weekly Infusions to One Treatment
Annette Logan-Parker, Founder and Chief Advocacy and Innovation Officer at Cure 4 The Kids Foundation, Innovation Council Member at Coalition Against Childhood Cancer (CAC2), shared on LinkedIn:
”He flew from Arizona to Las Vegas for a single infusion…and never needed another one.
For 39 years, this patient lived with hemophilia B.
That meant intravenous infusions of clotting factor every week, sometimes multiple times a week, just to prevent a bleed that could put him in the hospital.
Every week. For nearly four decades. That was his life.
In 2024, he came to our clinic and received Hemgenix (an FDA-approved gene therapy that delivers a working copy of the gene his body was missing).
One infusion. One afternoon.
More than a year later, his body is producing its own clotting factor. No more weekly treatments. No more planning his entire life around his next infusion.
Cure 4 The Kids Foundation was the first center in Nevada to administer this therapy, and one of only a handful on the entire West Coast.
This is what research looks like when it reaches the bedside. And it’s why Research Recognition Week matters.
Read the full story on our blog, including what families need to know about gene therapy, who’s eligible, and what’s coming next.”
Stay updated with Hemostasis Today.
-
Apr 29, 2026, 17:25Robert Brodsky: Ravulizumab Appears To Be Safe And Effective In Pregnancy
-
Apr 29, 2026, 16:53Chokri Ben Lamine: IV Iron Showdown – FCM vs Ferric Derisomaltose vs Iron Dextran
-
Apr 29, 2026, 16:46Deep Vein Thrombosis Risk in Jobs with Prolonged Sitting – NBCA
-
Apr 29, 2026, 16:41Vikramaditya Gangakar: Essential Pharmacy Facts You Should Know About Aspirin
-
Apr 29, 2026, 16:17W. Alberto Sifuentes Giraldo: Non-Criteria Manifestations of Antiphospholipid Syndrome
-
Apr 29, 2026, 16:12Mavis Agnes Kisakye: Concluding a Successful Entrepreneurs Training for Empowering Ptients’ Mothers
-
Apr 29, 2026, 15:48Kriti Batni: Happy to Share on Our Chapter Being Published in Medicine Update 2026
-
Apr 29, 2026, 15:46Dima Shulkin: Comparing HALP and PIV for Mortality Prediction in ACS
-
Apr 29, 2026, 15:44Sonal Sonu: Securing First Prize in Research Oral Presentation at the CME