Liz Devlin: When HHT Affects More Than What We Can See
Liz Devlin, Patient Coordinator at Mercy University Hospital, shared a post on LinkedIn:
“HHT is more than nosebleeds and red spots.
One of the challenges with Hereditary Haemorrhagic Telangiectasia (HHT) is that some of its most significant effects can’t be seen.
Arteriovenous malformations (AVMs) can occur internally, including in the lungs, brain, liver and gastrointestinal tract, and may sometimes be present without obvious symptoms.
HHT can also affect people very differently – even members of the same family.
What causes relatively mild symptoms for one person may have a much greater impact on another.
This is why appropriate HHT screening is so important.
Screening can help identify complications early and allow appropriate monitoring, treatment and follow-up where needed.
- Knowledge is power.
- Sharing information raises awareness.
- Awareness helps people affected by HHT feel less alone.
Please share to help make this often-hidden condition more visible.
Together, we raise awareness. Together, we make HHT seen.
Information and support: HHT Ireland.”
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