Peter Zdziarski: Will Glanzmann Thrombasthenia Patients Be Formally Recognized as Benefiting from SevenFACT?
Peter Zdziarski, Founder and Marketing Director of Glanzmann Thrombasthenia Advocacy Network, shared a post on LinkedIn:
“We’re seeing something important in the Glanzmann Thrombasthenia (GT) community.
More patients are using SevenFACT to manage bleeds, with consistently strong feedback.
Given the rarity of this condition and the limited, often unpredictable treatment options, we are always looking for more.
It’s also important to recognize how GT patients approach treatment.
Many prefer on-demand therapies used at the time of a bleed rather than methods requiring ongoing weekly dosing. Flexibility and real-time control are critical.
As real-world use continues to grow, it raises a simple question for HEMA Biologics:
Will Glanzmann Thrombasthenia patients be more formally recognized as a group that can benefit from SevenFACT?
Recognition drives awareness.
Awareness drives access.
And access is everything for rare disease communities.
There’s clear momentum here.
It’s worth paying attention to!”
More posts featuring Peter Zdziarski on Hemostasis Today.
-
Oct 21, 2026, 00:58Anees Ur Rahman: Completing a Two-Week Clinical Rotation at Haemophilia Treatment Centre Rawalpindi
-
Oct 21, 2026, 00:56Caitlyn Mooney: Pulmonary Embolism in Athletes, Recognition and Return to Sport
-
Oct 21, 2026, 00:54Hani Karrar: Pleased to Share Our Review on Emicizumab in Hemophilia A Management
-
Oct 21, 2026, 00:53Akshay Sharma: HSCT Leads to Sustained Improvements in Sickle Cell Cardiomyopathy for Up to 3 Years
-
Oct 21, 2026, 00:51Prateek Meena: The F. A. T. R. N. Mnemonic for Recognizing TTP
-
Oct 20, 2026, 23:51Registration Is Open for WFH CCS 2027 – World Federation of Hemophilia
-
Oct 20, 2026, 23:44Edward Lee Carter: AF in Nursing Homes – When Stroke Risk Scores Tell Only Part of the Story
-
Oct 20, 2026, 22:59Building Effective Patient Advocacy Through Collaboration Between Patients and Clinicians – EHC
-
Oct 20, 2026, 21:22Intezar Mehdi: When Prolonged Bleeding May Indicate an Underlying Bleeding Disorder